Hi Jane

Wondering how you are getting on?

It certainly is an awful shock when told of ESS, I couldnt believe it and it took some tme tocome t0 terms with it all .

Its helpsso much to come on the site and get help and all the kind words of encouragement from other woman in similar situations.

I felt so very lonely at first, but this site is brilliant and really does help .

My situation was very similar to yours.  I had not idea or sighs of anything only a large fibriod.  I had an elected hysterectomy  and was told all wsas fine.

It was 6 weeks later I got the phone call to say they had found ESS in the removed womb. First CT scan showed no spread, second one showed a tumour.

The hysterectomy was done 25 July 2011,   ESS recurred around NOv,     Local hospital couldnt offer much treatment, other than tablets, so I arranged it myself to go to the Royal Marsden in London, they have a specialist sarcoma unit. My local hospital is in Leeds.

I had surgery to remove the tumour early April ,  followed by radiotherapy every day for 6 1/2 weeks.

Ive been back home now for 3 weeks and I feel really well andquite relieved, glad the past year is over.

I go back 25 and 26 Sept for CT scan and checks with my consultants.

Please keep in touch, would love to hear how you are getting on, and always here to offer encouragement,

Hugs and love

Susan X    mumthumb

Hi Jane

Wondering how you are getting on?

It certainly is an awful shock when told of ESS, I couldnt believe it and it took some tme tocome t0 terms with it all .

Its helpsso much to come on the site and get help and all the kind words of encouragement from other woman in similar situations.

I felt so very lonely at first, but this site is brilliant and really does help .

My situation was very similar to yours.  I had not idea or sighs of anything only a large fibriod.  I had an elected hysterectomy  and was told all wsas fine.

It was 6 weeks later I got the phone call to say they had found ESS in the removed womb. First CT scan showed no spread, second one showed a tumour.

The hysterectomy was done 25 July 2011,   ESS recurred around NOv,     Local hospital couldnt offer much treatment, other than tablets, so I arranged it myself to go to the Royal Marsden in London, they have a specialist sarcoma unit. My local hospital is in Leeds.

I had surgery to remove the tumour early April ,  followed by radiotherapy every day for 6 1/2 weeks.

Ive been back home now for 3 weeks and I feel really well andquite relieved, glad the past year is over.

I go back 25 and 26 Sept for CT scan and checks with my consultants.

Please keep in touch, would love to hear how you are getting on, and always here to offer encouragement,

Hugs and love

Susan X    mumthumb