Hi Jane,

I was diagnosed with LG ESS three weeks ago. How have you been? I had a D&C and ablation to remove a fibroid. Mine was not near your size. My path lab from my procedure found cancer so they did a total hysterectomy. I was so shocked! They told me that they got all the cancer, everything was great. They also assured me that uterinan cancer when contained, isn't a problem anymore. Then I got the path labs from my hysterectomy that detailed the type of cancer. WOW! I was really surprised!

So, how have the last four months been. Does the shock ever wear off? How many times have you had to have scans?

I look forward to hearing from you.

Jackie

Hi Jackie,

How are you, hope all is going well.  When I read your post, your situation similar to mine, and when I got the phone call to say they had found ESS, I knew noting about it. Id had an elected hysterectomy because of pain from a large fibroid. The shock was awful, I felt as though I'd fallen in to a huge black hole. I couldnt speak for about 10 mins I FELT NUMB, my husband just sat next to me and said whatever it is I know you will be fine.  At first I thought there was little hope and as my 2 consultants didnt know what to suggest, other than tablets Letrozole and " lets see how things go "!

I contacted the Royal Marsden in London as a lovely lady , on this site, had told me her consultant had referred her to the |Marsden as they have a specialist sarcoma u it.

I went there and they were wonderful.  I had surgery to remove the tumour in April this year and then 6 1/2 weeks of radiotherarpy.  I first met with Prof3essor Judson, a wonderful doctor specialising in Sarcoma and then had a brilliant  surgeon and radiotherapist to care and look after me.

Ive been back home 4 weeks now and return to the Marsden for the check up and scan on 25 and 26 th Sept, so fingers crossed.

Please keep in touch, would love to hear hw you are now.

You nare so right about being positive and this site is great,  theres so much help and kindness and encouragement from others. Really makes a difference on low days.

Hus and love

Susan X   mumthumb

Hi Jackie,

How are you, hope all is going well.  When I read your post, your situation similar to mine, and when I got the phone call to say they had found ESS, I knew noting about it. Id had an elected hysterectomy because of pain from a large fibroid. The shock was awful, I felt as though I'd fallen in to a huge black hole. I couldnt speak for about 10 mins I FELT NUMB, my husband just sat next to me and said whatever it is I know you will be fine.  At first I thought there was little hope and as my 2 consultants didnt know what to suggest, other than tablets Letrozole and " lets see how things go "!

I contacted the Royal Marsden in London as a lovely lady , on this site, had told me her consultant had referred her to the |Marsden as they have a specialist sarcoma u it.

I went there and they were wonderful.  I had surgery to remove the tumour in April this year and then 6 1/2 weeks of radiotherarpy.  I first met with Prof3essor Judson, a wonderful doctor specialising in Sarcoma and then had a brilliant  surgeon and radiotherapist to care and look after me.

Ive been back home 4 weeks now and return to the Marsden for the check up and scan on 25 and 26 th Sept, so fingers crossed.

Please keep in touch, would love to hear hw you are now.

You nare so right about being positive and this site is great,  theres so much help and kindness and encouragement from others. Really makes a difference on low days.

Hus and love

Susan X   mumthumb