Hi Jane,

I'm really sorry to hear about your diagnosis - shock is something we, on this website, know all about.  I hope you have some support around you.  Are you having to wait a month to see the consultant - that seems a long time or is it to allow you to recover from your operation?

I'm afraid I don't know much about your kind of cancer.  As you say it is rare.  If you don't find anyone on this website who has been diagnosed withe the same, which I suspect you may not, you could try googling "rare cancers" as there are websites dedicated especially to rare cancers where you are much more likely to find a fellow sufferer. My cancer is also semi-rare and I use the other websites for specific information - here on cancer chat you may find more general emotional support.

They should have told you what is likely to happen next - do you have a Macmillan nurse assigned to you - if so she should give you some guidance, or you should be able to telephone one of the doctors to ask what the likely treatment paths are.

Good luck.

Hugs

Jan x

Hi Jane,

I'm really sorry to hear about your diagnosis - shock is something we, on this website, know all about.  I hope you have some support around you.  Are you having to wait a month to see the consultant - that seems a long time or is it to allow you to recover from your operation?

I'm afraid I don't know much about your kind of cancer.  As you say it is rare.  If you don't find anyone on this website who has been diagnosed withe the same, which I suspect you may not, you could try googling "rare cancers" as there are websites dedicated especially to rare cancers where you are much more likely to find a fellow sufferer. My cancer is also semi-rare and I use the other websites for specific information - here on cancer chat you may find more general emotional support.

They should have told you what is likely to happen next - do you have a Macmillan nurse assigned to you - if so she should give you some guidance, or you should be able to telephone one of the doctors to ask what the likely treatment paths are.

Good luck.

Hugs

Jan x