Hi

Endometrial Stromal Sarcoma Low Grade

I had a CT scan last Tuesday and still awaiting the results, fingers crossed no spread.  But the longer the time goes on the more worried I get.  Each time I have had scan, prior to my surgery they either forget to send the results or keep me waiting for over two weeks.  As I was not diagnosed until five weeks after surgery I feel the phrase "no news is good news" does not relate to me.

Has any one else had to wait and chase up scans?

Jane

                                   Hi Jane

                      Welcome to the site, i'm so sorry to here you news and i understand what you are going through, i was diagnosed with high grade ESS in March 2010 and i think the worst part was waiting for the results of my scans, like Linda said.. it's easy to say don't worry but it doesn't help trust me i couldn't function while i waited, but two years on and i'm still and feeling fine so if there are any questions please ask, your not alone and to be honest it's been great to talk to others in the same situation and i hope we can support and help you through this.

                                                                            hope to talk soon.

                                                                                                     Allison xx

                                   Hi Jane

                      Welcome to the site, i'm so sorry to here you news and i understand what you are going through, i was diagnosed with high grade ESS in March 2010 and i think the worst part was waiting for the results of my scans, like Linda said.. it's easy to say don't worry but it doesn't help trust me i couldn't function while i waited, but two years on and i'm still and feeling fine so if there are any questions please ask, your not alone and to be honest it's been great to talk to others in the same situation and i hope we can support and help you through this.

                                                                            hope to talk soon.

                                                                                                     Allison xx