Hi

Endometrial Stromal Sarcoma Low Grade

I had a CT scan last Tuesday and still awaiting the results, fingers crossed no spread.  But the longer the time goes on the more worried I get.  Each time I have had scan, prior to my surgery they either forget to send the results or keep me waiting for over two weeks.  As I was not diagnosed until five weeks after surgery I feel the phrase "no news is good news" does not relate to me.

Has any one else had to wait and chase up scans?

Jane

Hi Jane

Sorry to hear that you are still waiting for the results of your scan, I haven't had many scans, but when I have unless an inpatient at the hospital at the time,  I was waiting about 10 days before hearing anything. 

I was informed of the diagnosis 10 days after my op and 5 weeks seems to be a long time, but there must have been a reason for the hold up.

Easy to say, but try and stay positive until you hear anything and as Allison says hopefully we can help with any support, such as chatting about it or having a good old moan sometimes. They say it helps to get things off your chest, whoever "THEY" are goodness knows, but I know when I had a sound off with my hospice nurse now and again, she really helped by just listening and after any tears we would normally end up laughing.   Hopefully you will get the results very soon and they will be fine.   Please keep in touch and let us  know how you are getting on.

Take care

Linda x

Hi Jane

Sorry to hear that you are still waiting for the results of your scan, I haven't had many scans, but when I have unless an inpatient at the hospital at the time,  I was waiting about 10 days before hearing anything. 

I was informed of the diagnosis 10 days after my op and 5 weeks seems to be a long time, but there must have been a reason for the hold up.

Easy to say, but try and stay positive until you hear anything and as Allison says hopefully we can help with any support, such as chatting about it or having a good old moan sometimes. They say it helps to get things off your chest, whoever "THEY" are goodness knows, but I know when I had a sound off with my hospice nurse now and again, she really helped by just listening and after any tears we would normally end up laughing.   Hopefully you will get the results very soon and they will be fine.   Please keep in touch and let us  know how you are getting on.

Take care

Linda x