In May 2000 I had a total hysterectomy due to several abnormal smears. In October 2002 I was diagnosed with Low Grade Endometrial Stromal Sarcoma. The cancer make-up had leaked into my pelvic area before the hysterectomy and unfortunately grew attaching itself to the bowel. After the rugby sized tumour was removed I was treated with Megestrol tablets 4 per day gradually being reduced to 2. I had a few hiccups along the way with the temporary stoma bag and recurring DVT, so as long as I am on the Megestrol I will take Warfarin, which hopefully will keep the DVTs at bay. I was told it was likely the ESS would return in the future, but 9 years on I am still free and only have to see the Oncologist once a year for a check-up.
