Hi Jane,

I just wanted to welcome you to cancer chat and also let you know that you are not alone on Cancer Chat with this rare cancer. In fact, quite a few users have recently tried to get in touch with others with endometrial stromal sarcoma. There is for example this thread started by runnerduck123 who also has low grade endometrial stromal sarcoma. I think you will both find comfort in talking to each other. There is also the lovely mumthumb who has been very keen to meet others in the same boat. You can read her threads here and here. Your stories might not be quite the same but feel free to post on these threads and I will also make the other ladies aware of your story. They might be able to give you advice for example on what to ask the consultant next month and it's nice not to feel alone with this rare cancer.

There are also here great people like janojan who will welcome you with wise words and open arms!

Best wishes,

Lucie, Cancer Chat Moderator

Hi Jane,

I just wanted to welcome you to cancer chat and also let you know that you are not alone on Cancer Chat with this rare cancer. In fact, quite a few users have recently tried to get in touch with others with endometrial stromal sarcoma. There is for example this thread started by runnerduck123 who also has low grade endometrial stromal sarcoma. I think you will both find comfort in talking to each other. There is also the lovely mumthumb who has been very keen to meet others in the same boat. You can read her threads here and here. Your stories might not be quite the same but feel free to post on these threads and I will also make the other ladies aware of your story. They might be able to give you advice for example on what to ask the consultant next month and it's nice not to feel alone with this rare cancer.

There are also here great people like janojan who will welcome you with wise words and open arms!

Best wishes,

Lucie, Cancer Chat Moderator