I had a colonoscopy some years ago and was utterly terrified before it.

GP couldn't see or feel anything with me either but it did turn out to be piles. Nurse said that wasn't unusual, for them not to be noticed.

Hope you get good news 

Thank you  I’ will be taking the prep to night and then six in morning  as my appointment is afternoon can’t have any thing to eat now until after the colonoscopy. I’m really scared about tomorrow I’m still hoping it’s just internal piles hope the prep I can cope with  I guess I will be on toilet all night  hope I get good news as my stress levels are so high 

Your definitely not a baby, I've had a few down days lately, finding it hard to go to the toilet, my tumour is popping out, bloody pop out for good please x I can't be operated on as yet as  mine is too close to a gland,

I'm going to have to phone and see if what I can do as I don't want to constantly take laxatives as I need to have a loo close by

Readytobeat hi it’s awful I can constantly feel tumour in my bottom it’s annoying when I need to pass wind it bleeds fresh blood not always when I need to poo it’s just so runny constant feeling of needing to poo I guess it’s the pressure fed up of the feeling  I felt down yesterday I cried  I might have to take laxatives  she said to keep poo soft and chew your food  don’t eat potatoes with skin on  hope you things feel a lot better for you. Lots of love 

You're not a baby at all. You're a strong, amazing person going through an incredibly stressful experience.

As some others have commented, maybe see if you can modify your diet? Avoid fibre without getting too full on with that. 

I have the issue others have said. Passing blood and mucus quite often. Needing a BM much more often, either due to some bleeding or because I can only really pass small bms due to the tumour restricting things. It's unpleasant and always a little alarming, but I suppose it's the body's way of dealing with the issue. Does anyone know if that sounds correct?

I have my 2nd scan (mri, i think) tomorrow. Apparently my biopsy and 1st scan results are with the hospital now, bit I don't know anything yet. Praying that it will prove relatively straightforward once they've analysed it all.

James4000 thank you for your comment  I get fed up of constantly feeling the need to do bm but I don’t always go some times it’s just wind and blood  I only pass small amounts maybe due to where the tumour is placed  just hope it doesn’t cause a obstruction very loose bm every time  it is alarming. I dread going to toilet.  Hope your managing to eat a bit more  

It's bloody awful, my bum is on fire, I do eat now, I didn't at the beginning but that was because I didn't feel like eating as I was worrying about my results

I'm. Going to have to phone and ask for advice as I can't keep taking laxatives, I don't want to be stuck in the house, as when the start working I need to run to loo as quick as I can 

I've got 6 sessions of chemo, then radiotherapy, then they will operate, fingers crossed if it's shrunk, then more chemo 

I can't go that length of time constantly taking laxatives x

Not sure where you live but where I have my treatment they have a drop in centre that gives help and advice, family and friends can go too, ive been meaning to go all week but don't fancy constantly running to the loo

It's called Maggies, look online for more info x

Readytobeat my backside feels hot and sore  I have the really loose motions  never solid but then they want me to take laxatives don’t know why unless the tumour is partially blocking I’m scared of a blockage I’m constantly going to loo when I stand up with gravity I feel the need to go but only pass wind with blood at times. Scarey you get fed up of this feeling. Are you the same  I live in Leeds West Yorkshire 

Thanks Tango

Yes, I'm eating much better now. Thank you for asking. I think it was the stress and anxiety more than anything. I tend to get a bit of stomach cramps most days for a short while, but find lots of extra strong mints, peppermint tea, chamomile tea and sometimes a hot water bottle do the trick.

I've still lost a few pounds of weight, which is worrying, but I think maybe I've stabilised that a bit now I've got some of my appetite back.

I have similar to you in feeling like needing more BMs and then only passing wind and a little fluid sometimes (blood, mucus or poo).

It's all rather unpleasant. One thing I've found helps just to be more relaxed about a sudden 'escape' (usually a bit of blood) is to use a cotton pad (you know the ones, like a few cms across, for remov8ng makeup etc) and some microporous tape (get it all in Boots etc). I just tape a bit on my bum and try to get on with my day.

My treatment has been fast tracked and to be honest I haven't been told a lot only what treatment I'm having

I'm hoping that when I go to Maggies next week someone can advise me, my next treatment is in 2 weeks time,

I was told it would be every 2 weeks but for some reason it will be 3 weeks between 1st and 2nd treatment

They have a Maggies centre near the hospital

Hi James 4000 just wondering how are you getting on now. I’m fed up of keep going to the loo with wind and mucus  I Darby go out I need to be near a toilet  it seems the more I try and eat a little more  I need to be at the loo passing wind and mucus  keep getting a bit of stomach cramps it’s all worrying  hope things are.not too bad  x

Hi Tango

Thank you for checking in.

I'm up and down. I've kind of got used to having bouts of going to the toilet more often. I definitely produced a lot more blood and mucus after the colonscopy- i guess due to the biopsies? I try to tell myself this my body expelling the bad stuff and its a good thing. 

Psychologically I've maybe accepted things a little, but I veer into anxiety when I think about what's next: scan results, treatment plan etc.

It's very reassuring hearing from others in this forum (in this thread and one or two others) that there seems to be so much they can do these days to treat, cure and hopefully facilitate a full recovery. I'm clinging to that.

I had my MRI scan at the weekend (pretty intense mentally, but I got through it). I'm hopeful the MDT will be discussing my case in their meeting this Friday, and that the detail they've found is good news, relatively. I'm in limbo for now, and so worried about treatment- trying not to think about it.

I find "taking each day as it comes" very difficult in general, and more so now.

Hi Tango

Thank you for checking in.

I'm up and down. I've kind of got used to having bouts of going to the toilet more often. I definitely produced a lot more blood and mucus after the colonscopy- i guess due to the biopsies? I try to tell myself this my body expelling the bad stuff and its a good thing. 

Psychologically I've maybe accepted things a little, but I veer into anxiety when I think about what's next: scan results, treatment plan etc.

It's very reassuring hearing from others in this forum (in this thread and one or two others) that there seems to be so much they can do these days to treat, cure and hopefully facilitate a full recovery. I'm clinging to that.

I had my MRI scan at the weekend (pretty intense mentally, but I got through it). I'm hopeful the MDT will be discussing my case in their meeting this Friday, and that the detail they've found is good news, relatively. I'm in limbo for now, and so worried about treatment- trying not to think about it.

I find "taking each day as it comes" very difficult in general, and more so now.

James  can I ask what is the mri like to go through I’m worried about that as well I know that will be for me maybe this week I’m dreading it. Sorry for asking. I’m such a baby I have never been through much in my life and don’t know about health things much   Do you get stomach cramps  xx

James 4000  I guess what I’m worried about is. When they did the colonoscopy  she said the growth looks like it’s been there a while. And then  I guess it’s all the in known  I’m scared about every thing  haveing op and chemo  my mind runs away with me.  You sound to be a lot stronger and you are holding it all together I think your doing so well  better than me   Lots of love  x

Hi Tango 

Maybe it's just because I'm a week ahead of you, so I've had more time to process things, and my anxiety has settled a little, so I feel less ill.

I'm scared too, and am up and down with all this. I think that's a normal reaction for all of us.

I get cramps a little, bit I've always had a sensitive stomach. I'm unclear when it's hunger, wind, anxiety etc. I find, for me, a hot water bottle  lots of mints, peppermint tea and chamomile works.

The MRI was fine, I guess. It's not fun, as it took quite a long time. But essentially you just have to lie still and do nothing for ages. I was praying and meditating, as best I could, which helped me get through it. It doesn't hurt or anything. I did find that I could physically feel the last 2 scans they did (it's it was several scans one after another, for me), and the radiologist (?) said that was normal as the last ones are a stronger frequency so you may feel them and feel a little hot. The stress was all psychological and I was a bit shaken up afterwards but the staff were very kind and supportive.

James 4000  thank you for your reply. My anxiety levels are not good but all you can do is go with the flow so to speak I’m getting really constipated never have I ever been this way just hope where the tumour is situated it doesn’t cause a blockage I’m only eating small and only what I think I can maybe eat   Still loosing weight  which is a worry I’m really trying to eat better but it’s a struggle stomach makes lots of noise  so happy you are feeling better and taking things in your stride   All I want to do is like every one on here is just to be able to get on with your life. I’m a 70 year old piano student and have another course coming up but my mind won’t let me think about any thing else. Xx

Hi tangoPotter...weight loss is to be expected when our food intake is reduced.  Same for gurgling/gastric noises.. less food means less work for the gastric juices to break down.. bit like when you feel hungry and your tummy rumbles..

You say your concerned about a blockage being caused by the tumour...this is why it's vital to keep B.M regular...impacted faeces is excruciating..

Really hoping you have been given access to a nurse by your GP/consultant or hospital..

Eastendgirl thank you for your reply  it’s really lovely to talk to you thank you. I guess I’m just getting things out of proportion not thinking straight  every thing you say makes a lot of sense  I’m just over thinking every thing every extra pain extra wind extra stomach noise   Thank you for making me feel a bit better xx

TangoPotter...you are not getting things out of proportion,  you are struggling with the news you have been given.. that is very natural.. thanku for your kind words,  my only hope is that knowing you are not alone can help a little.. sharing helps to ease our worries..having support and understanding is vital...be kind to yourself x x

James4000 hi thank you I will have to try mints and mint tea to see if it helps. Today I’m feeling a bit achey around bottom of my back it could be how I have been laid in bed but I find every little thing that appears different with me I’m thinking is that because of the tumour I don’t know me any more  still waiting for my scans don’t know when they will be  but I’m just going to have to go with the flow of things  but every one on here is so lovely and helpful  lots of love xx

TangoPotter...hi there, may I offer a little advice please..

Have you been given an approximate date/time for the scans ?

All NHS departments are experiencing delays and longer waiting times.. so it's important to keep checking with the relevant department .. this can be appt referral/ xray department or the secretary to the Consultant assigned to your case.. going with the flow is inevitable at times but it's vital for your emotional and mental wellbeing to get as much info as possible x

Hi. I got a phone call last week not long after my colonoscopy from a hospital saying my scan will be in these two weeks she said the hospital will send an appointment date to my phone or they will ring me. That’s all I know.  Thank you for your reply  xx