Newly diagnosed Prostate Cancer at 54

Hi,

i was officially diagnosed yesterday although feel that I have known for some time since the testing process started back in early march. I am 54, I had a PSA score of 7.6 which is quite low except for my age. My MRI score was 5, I had a biopsy and 13 of 19 samples came back as positive. My Gleason score is 3+4. My stage is T3b. I consider myself quite healthy.

They are sending me for a Choline PET to see where else it might lead!

like others I have read lots on the web but not everything is consistent and don't know how much is relevant to my case. Yesterday was the first time that I had the chance to speak to someone, I seem to have spent the last 2 months being sent for tests rather than being able to talk and understand. I have been told that I need to have my prostate removed which is fine and I understand that, what I can't understand is why more tests and not just get on with it

i am keen for any feedback on Choline PET or anyone who has also any symptoms or experience of pain in the bones specifically thighs /pelvis  or feet or anyone with changing bowel habits and constipation or bloated stomach and excessive wind! Although I have mentioned all of these to my doctor and consultant they don't seem that interested. Originally they thought it was limited to my prostate but now with a t3b they seem to think it has gone to my seminal vesicle but I worry that it has gone further.

thanks

steve

 

 

  • Hi Zinzan.

    Many thanks for your good wishes. I'm feeling a bit nervous now, but it'll be over before I really know it. 

    Cheers

    Telemando

  • Met the surgeon today, still another 4 weeks before d day. He answered lots of questions and was helpful but I find as before that I still have lots more to answer that I didn't think of at the time.

    for those that had laparoscopic surgery, how long do the wounds take to heal? Strange question I know but we have a family holiday 4 weeks after surgery , unless by a miracle the surgery is earlier. Although I know that I will have to rest and won't be able to do much in the early weeks, I would like to be able to swim with my boys on holiday and thought this might be good exercise but I worry about the wounds and infection

  • After my RP, the wounds were dressed and I was visited by the district nurse a couple of times per week, when the dressings were changed.  They scabbed over pretty quickly and after a month they were just prominent scars.  After 10 years, the scars have faded away and you can hardly see them.

    I'm not sure that you'll be able to swim so soon after surgery. You will still be incontinent and wearing pads. You'll still be getting dreadfully tired, too.  I really don't know whether this is a good idea or not. I know it wouldn't have worked for me, but I'm not you.  I wish I could give you better advice. Sorry.

     

  • Thanks for the advice. I seem to have completely forgotten about the pads! Maybe I will just resign myself to sitting down, reading a book  and watching them. Maybe I am thinking about moving forward to fast.

    i have seen other posts talking about the tiredness and that makes me feel even more tired that now!

     

  • I have just completed 37 radiotherapy fractions to help cure my prostrate cancer and have been taking hormone s for 6 months (30 months to go . ) I felt really tired but have a really brisk walk , about 2/3 miles daily and slowly have started to feel much less tired . Doubtless being bombarded by radiotherapy killing cancer cells and healthy ones must have depleted my immune system because it takes a lot of energy for the body to repair them . Also being dehydrated can make you very tired and poos eating lots of Iron and Vitamin D is highly recommended also avoid fatty acids . A radical prostectomy will have a huge effect its like being shot and huge resources are needed to repair everything . Poor sllep and natural worry , will the cancer return will also drain your resources . Further treatment , usually a smaller amount of radiotherapy is common after the surgery usually to kill off the cancer that was not taken away and remains in the prostrate bed . After that you should be fine . The PSA level will be watched carefully for years now to see if they rise and usually if they creep up to about 20 you will be offered other interventions to keep you alive for many years .Don't sit around and feel sorry for yourself get new interests and get walking . best wishes Tonybear

  • Hi..my  hubby  just  diagnosed  with  advanced  prostate  cancer as  per  bone  scan  result  on 29th April. His  psa  was  48. Awaiting  biopsy  and  ct  result. Had  urinary  symptoms  for  a  few  months.  

    MRI result  cancer  outside  of  prostate  locally  to  3  pelvic  lymph nodes  and  seminal  vesicle   ifiltration also. But  bone  scan  result  changed  all  that. We  are  very  upset  at  present. Advised  of oncology  referral.started  on  HR treatment. Yesterday Becalumaide  spelling  not  accurate and Hormone  Injection  in  7 to  10  days  to  start  also. Mentioned  chemo  and  radiotherapy  also  going  forward  as  only  the  left  pubic  bone involved.Any  advice  from  similiar  members  would  be much  appreciated  as  overwhelmed  to  say  the  least.

  • Hi im not quite the same as my prostate cancer has spread to lymph nodes spine ribs pelvis and a lung,i was diagnosed Feb 2016 went onto hormone therapy ASAP , then 6 sessions of chemotherapy over 4 months.  i have hormone injections every 3months and tablets daily for life ,. Details,=stage 4 T3B N1 M1B  Gleason 8 .i have found living with my univited guest a nuisance at times but managing ok ,im lacking energy puffing alot but ok with rest now and again, being 70 now doesn't help .

    If i can help please let me know, remember im not medically trained just cancer patient .

    Billy