Newly diagnosed Prostate Cancer at 54

Hi,

i was officially diagnosed yesterday although feel that I have known for some time since the testing process started back in early march. I am 54, I had a PSA score of 7.6 which is quite low except for my age. My MRI score was 5, I had a biopsy and 13 of 19 samples came back as positive. My Gleason score is 3+4. My stage is T3b. I consider myself quite healthy.

They are sending me for a Choline PET to see where else it might lead!

like others I have read lots on the web but not everything is consistent and don't know how much is relevant to my case. Yesterday was the first time that I had the chance to speak to someone, I seem to have spent the last 2 months being sent for tests rather than being able to talk and understand. I have been told that I need to have my prostate removed which is fine and I understand that, what I can't understand is why more tests and not just get on with it

i am keen for any feedback on Choline PET or anyone who has also any symptoms or experience of pain in the bones specifically thighs /pelvis  or feet or anyone with changing bowel habits and constipation or bloated stomach and excessive wind! Although I have mentioned all of these to my doctor and consultant they don't seem that interested. Originally they thought it was limited to my prostate but now with a t3b they seem to think it has gone to my seminal vesicle but I worry that it has gone further.

thanks

steve

 

 

  • Hi Zinzan.

    Some factors that increase your risk of diabetes can also increase your risk of certain cancers. However, I think this is less likely to be an issue for prostate cancer.  

    There is a very useful leaflet on cancer treatments and diabetes which I think you might find useful. Just click on this link.

     

  • Hi Billygoat.

    Blood tests can only measure a substance at the specific moment when the blood was taken. Since we're all living, breathing beings, it is to be expected that we'll get different results at different times.

    I have a major issue with blood pressure measurements. My BP goes up and down like a yo-yo so getting an accurate measurement is a nightmare. It has caused me numerous problems over the last 40 years - including getting my radical prostatectomy cancelled - twice!  For the third attempt I needed to take so many tablets to force my BP down to a stable low reading that I was like a zombie in the days before surgery!  (but no one noticed the difference).  Then when they took my BP the following day it was below 100/60 and they were worried that it was too low!  Fortunately, they took it a second time and it had risen slightly so no panic.  

  • Hi telemando 

    Before they knew about the cancer i was having loads of other tests I was having shortness of breath as soon as I did anything they booked me in for a treadmill test, connect me to a machine and see what readings were, never done nurse couldn't find BP she tried three times both arms she checked her self said it was working OK, went to get specialist he couldn't get any thing either (i know i was still alive i think) in the end they connected me to m/c wires everywhere all i got was,, ooh,, they never told me anything next week letter from doctor for some heart tablets, that was a bit of a shock.. How are you doing with your problem.

    Billy 

  • I've found a few tricks which help with my BP.  I'm normally on two tablets of Lisinopril a day, and I usually take one in the morning and the second in the evening, plus one tablet of Bendrofluazide which I also take in the morning.  I've been on this for around 10 years, and I think it's probably calmed down the worst excesses of my high BP. 

    If I know I'm going to have an "important" BP test then I'll take all three tablets at once, 2-3 hours before the appointment time - and then resume the usual regime the next morning. That seems to work OK. 

    I've got my own BP meter and when I use it and I'm relaxed, I can get acceptably low readings. However, it all just goes to pot when a doctor or nurse takes it.  It's called white coat hypertension and it's been a problem for me all my adult life. 

  • Hi tele it wasn't BP so much as heart had slowed down I'm on permanent fludrocortisone it's a steroid I'm only on mcg but I can do things normal know as long as im careful to much exercise I've had it (manely 5mins) thats trouble getting old. Hope your bladder sorted, good luck.

    Billy 

  • Hi Billygoat.  My bladder cancer operation is in exactly 7 days times. I hope that this time (1pm) next week I'll be waking up in recovery.  I'll keep you posted, but meanwhile it's that strange waiting period one gets before surgery... 

  • Hi tele, of wish you all the best for next week. I have my Choline PET tomorrow but there saying by surgery won't be for another 5 weeks - this seems like a lifetime of waiting when you just want it taken out!

  • Hi zinzan 

    Your lucky from finding my C to starting treatment was over FOUR months luckily it all worked fine in the end, try to consontrate on something you like to do, it does help.. 

    Billy 

  • Hi Tele,

    wishing you good luck for tomorrow 

  • Hi billy,

    thanks for for the wise advice, tried to focus on a few things