Hi  I was diagnosed with cmml in April 2021

I'm still in shock lay awake at night wondering what's going to happen.

I was offered no treatment am on " watch and observe" program .

Have bloods checked periodically.

I'm told it's a slow growing cancer.

Although  only diagnosed two years ago specialist said I've probably had a lot longer 

I'm 71  

Just plodding on lol

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi..Glad your over your dizzy spell.

'Ive never been Dubai.

My daughter has several times and says it's fab..

Enjoy Spain..

Got appointment reference lungs end of month.

Take care x x

Hi strawbs, how are you keeping, did you get your chest infection cleared up, I'm not to bad now, I got covid after coming back from Spain, I was pretty bad with bad chest and blocked head, but lot better now ,Spain was hot 33 degrees most days, I like the sun but I had to keep in the shade a while ,luckily the bar and pool were close by, benidorm is OK but I don't think I would go again,  it's like Blackpool on steroids,  anyway hope you are well ,look after yourself take care x

Hi Ampisparticus.

Thanks for message 

No haven't got lung cleared up.

Still having tests.

Think maybe I'm stuck with it.

I've had COVID once couple years back and because of cmml was put on an anti viral drug can't remember name.

Do you have COVID jabs.?

Glad you've recovered.

Sounds like you need another holiday.

Do you travel alone?

Take care x x

Hi strawbs sorry to hear you still got your lung infection, hope it nothing serious, I had all the covid jabs plus boosters, for all the good it did me, I'm beginning to think it was all a scam, if I could afford it I'd have a week in the sun every couple of months, this cold weather doesn't agree with me , I go on holiday with my wife, I sometimes have a weekend away with the lads for a boozy few days, she goes away with her sisters/friends, do you travel away on your own, I suppose all we have to look forward to is dark nights and cold damp weather, anyway take care look after yourself, hope that infection clears up x

Hi Ampisparticus.

Still got lung problems.

Got another scan next week.

Never smoked so don't know what's causing issues .

Like to holiday with friends or family.

Have holidayed alone but find it lonely..When are your next bloods ?

Take care X X x

Hi strwbs how are you getting on with your chest problems, they cleared up yet , I've never holidayed alone, I'm a bit too reserved to mingle, always with family and friends, what family do you have, children ? my next bloods are in November, are yours due soon ,look after yourself take care x

Hi Ampisparticus.

My cmml seems to have taken a back seat lo.Next bloods December.

Had an ECG and also a CT thorax scan last week.Got a consultant  to discuss results 20th of this month.

My cruise is with five girl friends.

Holiday next year with my daughter and son in law.

Got two children and two adorable grandchildren.

Take care. X x x

Hi strawbs hope it's good news on your medical issues, but why does it always take so long to get the results,  anyway hope your feeling well regardless, enjoy your cruise, is it a first time for you , I'm not sure if I would enjoy being on a boat to long to be honest, I've 4 children, 2 girls from a previous marriage and 2 boys from my second marriage my girls have 6 children between them , I'm also a great granddad , my oldest grand daughter just had a little girl,  I don't see much of them as they live in England but try to keep in touch , anyway take care stay safe xx

Hi Ampisparticus.

Lungs now sorted

How are you keeping ?

Hope all good.

Is it November you go for bloods ?  

My bloods December x x

Hi strawbs glad to hear your all OK I'm well, or was well till I had my flue injection this week, I woke up the next day throbbing headache, my tinnitus was deafening me and my head full, it was so bad I couldn't hear anything even with my hearing aid in, it's a bit better today but hearing still not great, anyway have you had your holiday yet, my blood test results are scheduled for 18November, I'll let you know how I get on ,good luck with your blood tests take care xx

Hi strawbs glad to hear your all OK I'm well, or was well till I had my flue injection this week, I woke up the next day throbbing headache, my tinnitus was deafening me and my head full, it was so bad I couldn't hear anything even with my hearing aid in, it's a bit better today but hearing still not great, anyway have you had your holiday yet, my blood test results are scheduled for 18November, I'll let you know how I get on ,good luck with your blood tests take care xx

Hi Ampisparticus.

I find this site difficult to use lol.

Taken ages to find our chat.

I've got bloods same month as you in December.

We can compare notes..

Hope your well x

Hello Strawberry99

I'm sorry to that you've been having some problems with finding chats on the forum. There are a couple of things you can do to make this easier for yourself in the future. 

On the right hand side of the screen you should see a box that says Bookmark this thread. If you click on that you will then be able to locate the thread via your bookmarks ribbon at the top right hand of the page next to your profile icon. 

You can also find previous threads and posts you've made by clicking on your profile icon and then selecting profile and activity. 

Hopefully, this will help make it a little easier for you to keep connected with other forum members but do get in touch if you need further help. 

Best wishes, 
Jenn
Cancer Chat moderator 

Thank you Jenn for your advice 

Hi strawbs sorry not been in touch for a while lots going on ,I got my results a couple of weeks ago all good so everything OK, next one in may, how are you keeping anyway, have you got your results yet? fingers crossed for you, are you all ready for Christmas or do you leave it till the last minute like me, do you spend Christmas at home or go away, it's such a hassle and I'm all stressed out come Christmas day, I would like to get it over with then jump on a plane to lanzarote or somewhere warm for a couple of weeks  anyway hope your well and hear from you soon take care xx

Hi. Ampisparticus.

Sorry for late reply only just got message.

Glad you got good results.

I had to reschedule my appointment as wasn't well.

Had a telephone appointment instead.

Dr looked at bloods I had taken at Drs and said all stable.

He will see me in clinic in May..

Wishing you and your family a Happy Christmas.

Hope 2025 is a good year for you X X x

Hi strawbs sorry not been in touch sooner, glad to hear your bloods are all stable,hope your feeling better, hope it didn't spoil your Christmas, we had a nice Christmas, quiet not as stressful as other years, but a couple of days after got a dose of the flu was bad for about a week, I had the flu jab, which knocked me about a bit, so don't understand how I got it,I won't be having one next year ,anyway hope 2025 is a great year for you and your family, health, wealth and happiness take care xx 

Hi Ampisparticus.

Happy New Year to you and your family.

I picked up a virus at Christmas which knocked me off my feet.

Been really poorly.

Only just getting out and about.agsain

Still got a terrible cough.

Glad you got over flu and are now fit again 

Hoping for some nice weather soon.

It's been horrible here past few weeks.

Take care and keep in touch X X x

Hi strawbs sorry to hear you have been unwell, a lot of people seem to have been down with a virus over Christmas and the new year ,hope you get back to normal soon , weather is terrible but you seem to have had it worse than us in Ireland, cold and damp but not too much snow, hopefully it will get better soon ,well take care and keep in touch xx

️ ️

Hi strawbs hope you are well, didn't realise it's been 3 months since we were last in touch, time flies, how are you keeping ,everything OK? not much happening my end to be honest, I've got a blood test this week, Thursday actually,  it should be just routine hopefully, as I feel great, no problems with anything just a bit tired but that's due to late nights watching tv ,how are you have you a blood test coming up ? anything exciting happening your part of the world? well hope to hear from you soon stay safe take care xx