Cmml

I have recently been diagnosed with CMML it came as a massive shock as I've always felt quite healthy , the only thing I've ever had was appendicitis, it was only found during a blood test , I find myself waking in the middle of the night wondering how is this going to affect my life, although I'm 71 years old I am quite active and enjoy gardening, walking, and I'm wondering if this is going to shorten my life , its worrying me more that I would like to admit 

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  • Hi  I was diagnosed with cmml in April 2021

    I'm still in shock lay awake at night wondering what's going to happen.

    I was offered no treatment am on " watch and observe" program .

    Have bloods checked periodically.

    I'm told it's a slow growing cancer.

    Although  only diagnosed two years ago specialist said I've probably had a lot longer 

    I'm 71  

    Just plodding on lol

  • Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

  • Hi Ampisparticus.

    Lungs now sorted

    How are you keeping ?

    Hope all good.

    Is it November you go for bloods ?  

    My bloods December x x

  • Hi strawbs glad to hear your all OK I'm well, or was well till I had my flue injection this week, I woke up the next day throbbing headache, my tinnitus was deafening me and my head full, it was so bad I couldn't hear anything even with my hearing aid in, it's a bit better today but hearing still not great, anyway have you had your holiday yet, my blood test results are scheduled for 18November, I'll let you know how I get on ,good luck with your blood tests take care xx

  • Hi Ampisparticus.

    I find this site difficult to use lol.

    Taken ages to find our chat.

    I've got bloods same month as you in December.

    We can compare notes..

    Hope your well x

  • Hello Strawberry99

    I'm sorry to that you've been having some problems with finding chats on the forum. There are a couple of things you can do to make this easier for yourself in the future. 

    On the right hand side of the screen you should see a box that says Bookmark this thread. If you click on that you will then be able to locate the thread via your bookmarks ribbon at the top right hand of the page next to your profile icon. 

    You can also find previous threads and posts you've made by clicking on your profile icon and then selecting profile and activity. 

    Hopefully, this will help make it a little easier for you to keep connected with other forum members but do get in touch if you need further help. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi strawbs sorry not been in touch for a while lots going on ,I got my results a couple of weeks ago all good so everything OK, next one in may, how are you keeping anyway, have you got your results yet? fingers crossed for you, are you all ready for Christmas or do you leave it till the last minute like me, do you spend Christmas at home or go away, it's such a hassle and I'm all stressed out come Christmas day, I would like to get it over with then jump on a plane to lanzarote or somewhere warm for a couple of weeks  anyway hope your well and hear from you soon take care xx

  • Hi. Ampisparticus.

    Sorry for late reply only just got message.

    Glad you got good results.

    I had to reschedule my appointment as wasn't well.

    Had a telephone appointment instead.

    Dr looked at bloods I had taken at Drs and said all stable.

    He will see me in clinic in May..

    Wishing you and your family a Happy Christmas.

    Hope 2025 is a good year for you X X x

  • Hi strawbs sorry not been in touch sooner, glad to hear your bloods are all stable,hope your feeling better, hope it didn't spoil your Christmas, we had a nice Christmas, quiet not as stressful as other years, but a couple of days after got a dose of the flu was bad for about a week, I had the flu jab, which knocked me about a bit, so don't understand how I got it,I won't be having one next year ,anyway hope 2025 is a great year for you and your family, health, wealth and happiness take care xx 

  • Hi Ampisparticus.

    Happy New Year to you and your family.

    I picked up a virus at Christmas which knocked me off my feet.

    Been really poorly.

    Only just getting out and about.agsain

    Still got a terrible cough.

    Glad you got over flu and are now fit again 

    Hoping for some nice weather soon.

    It's been horrible here past few weeks.

    Take care and keep in touch X X x

  • Hi strawbs sorry to hear you have been unwell, a lot of people seem to have been down with a virus over Christmas and the new year ,hope you get back to normal soon , weather is terrible but you seem to have had it worse than us in Ireland, cold and damp but not too much snow, hopefully it will get better soon ,well take care and keep in touch xx

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  • Hi strawbs sorry to hear you have been unwell, a lot of people seem to have been down with a virus over Christmas and the new year ,hope you get back to normal soon , weather is terrible but you seem to have had it worse than us in Ireland, cold and damp but not too much snow, hopefully it will get better soon ,well take care and keep in touch xx

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