Hi  I was diagnosed with cmml in April 2021

I'm still in shock lay awake at night wondering what's going to happen.

I was offered no treatment am on " watch and observe" program .

Have bloods checked periodically.

I'm told it's a slow growing cancer.

Although  only diagnosed two years ago specialist said I've probably had a lot longer 

I'm 71  

Just plodding on lol

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi Ampispartacus 

Thanks for your reply 

It was discovered I had an enlarged Spleen after having a scan and then sent for bone marrow biopsy were they found cancer.

That worries me .My spleen nearly twice normal size and yet no  treatment  probably because more problems to remove ??

When I was told I had CMML my first question was " what treatment will I have" Was shocked when told "nothing" 

Told on "watch and observe " program.

.I think because  my Cancer smouldering that's plan 

Only advise I was given was to lead a healthy life style and exercise.

I try to walk each day and I'm afraid to say my healthy diet includes the occasional glass of wine .

Take care x

Hi strawberry 99 

Nice to hear from you hope you're keeping well your story mirrors mine only difference was I fainted one morning which led to me having blood tests every thing else is the same as your experience, I live by the sea and try to get to have a walk along the beach to keep active but I find I do get out of breath if I tend to overdo it ,I used to drink quite a lot in my younger days but now it's just an odd pint maybe at weekends I'm due a blood test in a couple of months so see what happens next, you take care and keep positive x

Hi  Ampispartacus.

Nice to hear from you

CMML is rare so nice to correspond with someone in same condition .

Keep plodding on and let me know how blood tests go.

Take care x

Hi Ampispartacus 

CMML is rare so nice to correspond with someone in same condition.

Take care and let me know how you blood tests go. X

It is rare srawbs no one I know had heard of it they had to Google it, I'll let you know how's things progress take care and stay positive best wishes x

Hi.Amispartacus.

Just wondering how your getting on ?

Hope all is good x

Hi strawberry99 I'm good thanks how are you keeping , nice too hear from you , I was going too give you a quick txt when I had my next blood tests,  I thought it was this month but its not till November , but I'm good , I seem too get out of breath a bit quicker but I've cut down on anything too heavy , anyway how are you , when is your next blood tests ,any changes in your health , I'm going to start doing a bit more walking along the beach , I keep saying I'll go but keep putting it off so have to make an effort, we'll best wishes and take care x

Hi Ampispartacus.

Thought your bloods were this month hence message 

My bloods not until December.

I suffer really badly with fatigue 

Don't feel my normal self but ok 

My Mum always sad if you put one foot out bed in the morning and the other one followed your ok

What part of country are you from 

Take care x

Hi strawberry yes like I said I do get out of breath more easily , I'm in Ireland on the East Coast in a little village 12 kilometres outside the town of drogheda, its 40 kilometres from Dublin and about 60 kilometres from Belfast, I'm English and lived here for about 25 years, I'm presuming you are in the UK, anyway take care and keep well x

Hi 

Let me know how you get on with bloods and I will do likewise 

Yes live on Wirral 

Take care x