Hi  I was diagnosed with cmml in April 2021

I'm still in shock lay awake at night wondering what's going to happen.

I was offered no treatment am on " watch and observe" program .

Have bloods checked periodically.

I'm told it's a slow growing cancer.

Although  only diagnosed two years ago specialist said I've probably had a lot longer 

I'm 71  

Just plodding on lol

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi Ampisparticus 

I'm not too bad thanks

Had a lung infection.

Just waiting on scan results to see if clear..

I don't smoke never have so don't know were lung infection came from

Actually think it's our condition.

Our immune system suppressed making us susceptable to infections ..

My next bloods not till December 

12 monthly now.

Take care 

Let me know your results x x

Hi strawberries sorry to hear you weren't well, hope it wasn't too bad, maybe a couple of weeks in Spain might help with the hot weather,, I have to go for results 27 may so will let you know how I get on 

take care chat soon x

Hi strawbs how are you ? That lung infection cleared up? I went for my my results Monday, everything aok blood dropped a bit but nothing to be concerned about, they just asked the usual questions, any bleeding, bruises etc, I have nothing like that just get out of breath a bit quick but I'm taking it easy so nothing to worry about, anyway how are things with you anything exiting happening, this weather is not great is it ,any holidays booked , do you go abroad or staycation, I love the sun ,cold weather depresses me, hope we get a half decent summer, I'll be able to get the BBQ out with a bit of luck, well take care,look after yourself hope to hear from you soon xx

Hi Ampisparticus.

Glad you got good results.

Still got problem with lungs.

Been referred to Respiratory specialist ??

Yes l I ike warm weather also.

Got a cruise booked with friends in October so hope get lungs sorted as that might be in jepody lol.

Take care.

Hi strawbs sorry to hear your lung infection has not cleared, hopefully the specialist can sort you out, apart from that how are you feeling, where is the cruise taking you, hopefully somewhere warm, I like my feet on dry land so cruises are not for me I'm afraid, well keep in touch and hope you're feeling better soon take care x

Hi Ampisparticus.

Thanks for reply.

Had couple of scans on lungs checking for Cancer but come back negative.

Still got problems got an appointment next month to discuss findings.

Hope your ok.

Got nice weather here at mo hope continues .

Take care x X X

Hi strawbs sorry to hear your still unwell, good news about the scans though , hope your appointment next month is good news, I'm not too bad although for a few days last week I had a spell of light headedness and a bit dizzy for some reason ,not sure why but better now, keep in touch let me know how your results show, enjoy the nice weather take care xx

Hi Ampisparticus.

Thanks for reply.

Glad your dizzy spell has passed.

Yes enjoying nice weather.

Have you got any hols booked ?.

Take care x x x

Hi strawbs how are you, I recon the dizzy spell was caused by a bang on the head I got on my car door, still all clear now , I've got a week in Spain on the 15 July, hopefully the weather will be warmer over there ,I was in dubai in February, that was a great experience, balloon trips in the desert and we went up the burj Khalifa, the highest man made structure in the world ,fabulous place ,let me know haw your tests go on your chest infection, take care x

Hi..Glad your over your dizzy spell.

'Ive never been Dubai.

My daughter has several times and says it's fab..

Enjoy Spain..

Got appointment reference lungs end of month.

Take care x x

Hi..Glad your over your dizzy spell.

'Ive never been Dubai.

My daughter has several times and says it's fab..

Enjoy Spain..

Got appointment reference lungs end of month.

Take care x x

Hi strawbs, how are you keeping, did you get your chest infection cleared up, I'm not to bad now, I got covid after coming back from Spain, I was pretty bad with bad chest and blocked head, but lot better now ,Spain was hot 33 degrees most days, I like the sun but I had to keep in the shade a while ,luckily the bar and pool were close by, benidorm is OK but I don't think I would go again,  it's like Blackpool on steroids,  anyway hope you are well ,look after yourself take care x

Hi Ampisparticus.

Thanks for message 

No haven't got lung cleared up.

Still having tests.

Think maybe I'm stuck with it.

I've had COVID once couple years back and because of cmml was put on an anti viral drug can't remember name.

Do you have COVID jabs.?

Glad you've recovered.

Sounds like you need another holiday.

Do you travel alone?

Take care x x

Hi strawbs sorry to hear you still got your lung infection, hope it nothing serious, I had all the covid jabs plus boosters, for all the good it did me, I'm beginning to think it was all a scam, if I could afford it I'd have a week in the sun every couple of months, this cold weather doesn't agree with me , I go on holiday with my wife, I sometimes have a weekend away with the lads for a boozy few days, she goes away with her sisters/friends, do you travel away on your own, I suppose all we have to look forward to is dark nights and cold damp weather, anyway take care look after yourself, hope that infection clears up x

Hi Ampisparticus.

Still got lung problems.

Got another scan next week.

Never smoked so don't know what's causing issues .

Like to holiday with friends or family.

Have holidayed alone but find it lonely..When are your next bloods ?

Take care X X x

Hi strwbs how are you getting on with your chest problems, they cleared up yet , I've never holidayed alone, I'm a bit too reserved to mingle, always with family and friends, what family do you have, children ? my next bloods are in November, are yours due soon ,look after yourself take care x

Hi Ampisparticus.

My cmml seems to have taken a back seat lo.Next bloods December.

Had an ECG and also a CT thorax scan last week.Got a consultant  to discuss results 20th of this month.

My cruise is with five girl friends.

Holiday next year with my daughter and son in law.

Got two children and two adorable grandchildren.

Take care. X x x

Hi strawbs hope it's good news on your medical issues, but why does it always take so long to get the results,  anyway hope your feeling well regardless, enjoy your cruise, is it a first time for you , I'm not sure if I would enjoy being on a boat to long to be honest, I've 4 children, 2 girls from a previous marriage and 2 boys from my second marriage my girls have 6 children between them , I'm also a great granddad , my oldest grand daughter just had a little girl,  I don't see much of them as they live in England but try to keep in touch , anyway take care stay safe xx

Hi Ampisparticus.

Lungs now sorted

How are you keeping ?

Hope all good.

Is it November you go for bloods ?  

My bloods December x x

Hi strawbs glad to hear your all OK I'm well, or was well till I had my flue injection this week, I woke up the next day throbbing headache, my tinnitus was deafening me and my head full, it was so bad I couldn't hear anything even with my hearing aid in, it's a bit better today but hearing still not great, anyway have you had your holiday yet, my blood test results are scheduled for 18November, I'll let you know how I get on ,good luck with your blood tests take care xx

Hi Ampisparticus.

I find this site difficult to use lol.

Taken ages to find our chat.

I've got bloods same month as you in December.

We can compare notes..

Hope your well x