Hi  I was diagnosed with cmml in April 2021

I'm still in shock lay awake at night wondering what's going to happen.

I was offered no treatment am on " watch and observe" program .

Have bloods checked periodically.

I'm told it's a slow growing cancer.

Although  only diagnosed two years ago specialist said I've probably had a lot longer 

I'm 71  

Just plodding on lol

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi strawberry  

Thanks for your post ,that's good news although 12 months seems a long time ,mine is 6 months, I was well pleased to get my results you must be too , well have a great Christmas, hope santa brings you lots of goodies, presuming you're on the good list , and have a fabulous new year, keep in touch it would be nice too hear from you, how things are going ok best wishes take care x

Hi Amispartacus.

Yes 12 months a long time..

Initially was every 4 months then 6 months now 12 months.

Did you get my email address.? 

We can chat through email if you want.

Take care x x

Hi Amispartacus

.Think my email address I sent has been removed.

Think it's against forum rules and regulations x x

Hi strawberry 

Not sure if it's against any rules but I have your email address so no problem ,don't forget to keep in touch it would be nice to see how you are doing have a nice Christmas, take care x 

Hi strawberry 

Not sure if they took down your email address, but I received it any way so no problem, hope you have a good Christmas and New year, don't forget keep in touch, it would be nice to hear how you are keeping, take care x

Hi Ampispartacus.

Catch-up in New year x x

Hi Ampispartacus.How are you doing ?

Hope all good x

Hi strawberries I'm good thanks , sorry I've not been in touch before now but time just seems to fly past, I had bloods took yesterday (Wednesday) so should get the results in a week or so ,fingers crossed all is well, but I feel OK just a bit tired, and get out of breath if I try too do too much, enjoying that bit of good weather we had, sunshine always makes you feel good, any way how are you keeping any news, when is your next blood test , are yours every 6 months like me ? anyway let me know how you're doing and I won't leave it so long next time ,take care xx

Hi Ampisparticus 

I'm not too bad thanks

Had a lung infection.

Just waiting on scan results to see if clear..

I don't smoke never have so don't know were lung infection came from

Actually think it's our condition.

Our immune system suppressed making us susceptable to infections ..

My next bloods not till December 

12 monthly now.

Take care 

Let me know your results x x

Hi strawberries sorry to hear you weren't well, hope it wasn't too bad, maybe a couple of weeks in Spain might help with the hot weather,, I have to go for results 27 may so will let you know how I get on 

take care chat soon x

Hi strawberries sorry to hear you weren't well, hope it wasn't too bad, maybe a couple of weeks in Spain might help with the hot weather,, I have to go for results 27 may so will let you know how I get on 

take care chat soon x

Hi strawbs how are you ? That lung infection cleared up? I went for my my results Monday, everything aok blood dropped a bit but nothing to be concerned about, they just asked the usual questions, any bleeding, bruises etc, I have nothing like that just get out of breath a bit quick but I'm taking it easy so nothing to worry about, anyway how are things with you anything exiting happening, this weather is not great is it ,any holidays booked , do you go abroad or staycation, I love the sun ,cold weather depresses me, hope we get a half decent summer, I'll be able to get the BBQ out with a bit of luck, well take care,look after yourself hope to hear from you soon xx

Hi Ampisparticus.

Glad you got good results.

Still got problem with lungs.

Been referred to Respiratory specialist ??

Yes l I ike warm weather also.

Got a cruise booked with friends in October so hope get lungs sorted as that might be in jepody lol.

Take care.

Hi strawbs sorry to hear your lung infection has not cleared, hopefully the specialist can sort you out, apart from that how are you feeling, where is the cruise taking you, hopefully somewhere warm, I like my feet on dry land so cruises are not for me I'm afraid, well keep in touch and hope you're feeling better soon take care x

Hi Ampisparticus.

Thanks for reply.

Had couple of scans on lungs checking for Cancer but come back negative.

Still got problems got an appointment next month to discuss findings.

Hope your ok.

Got nice weather here at mo hope continues .

Take care x X X

Hi strawbs sorry to hear your still unwell, good news about the scans though , hope your appointment next month is good news, I'm not too bad although for a few days last week I had a spell of light headedness and a bit dizzy for some reason ,not sure why but better now, keep in touch let me know how your results show, enjoy the nice weather take care xx

Hi Ampisparticus.

Thanks for reply.

Glad your dizzy spell has passed.

Yes enjoying nice weather.

Have you got any hols booked ?.

Take care x x x

Hi strawbs how are you, I recon the dizzy spell was caused by a bang on the head I got on my car door, still all clear now , I've got a week in Spain on the 15 July, hopefully the weather will be warmer over there ,I was in dubai in February, that was a great experience, balloon trips in the desert and we went up the burj Khalifa, the highest man made structure in the world ,fabulous place ,let me know haw your tests go on your chest infection, take care x

Hi..Glad your over your dizzy spell.

'Ive never been Dubai.

My daughter has several times and says it's fab..

Enjoy Spain..

Got appointment reference lungs end of month.

Take care x x

Hi strawbs, how are you keeping, did you get your chest infection cleared up, I'm not to bad now, I got covid after coming back from Spain, I was pretty bad with bad chest and blocked head, but lot better now ,Spain was hot 33 degrees most days, I like the sun but I had to keep in the shade a while ,luckily the bar and pool were close by, benidorm is OK but I don't think I would go again,  it's like Blackpool on steroids,  anyway hope you are well ,look after yourself take care x

Hi Ampisparticus.

Thanks for message 

No haven't got lung cleared up.

Still having tests.

Think maybe I'm stuck with it.

I've had COVID once couple years back and because of cmml was put on an anti viral drug can't remember name.

Do you have COVID jabs.?

Glad you've recovered.

Sounds like you need another holiday.

Do you travel alone?

Take care x x