Hi lollypop

So pleased the lovely Brian has responded to you as he has a wealth of first hand knowledge in this area and is a great forum member.  I really just wanted to add my welcome (and could not resist your avatar picture as it used to be my fave lolly (many moons ago!!).  Brian is right when he says the waiting is often the very worst part of a cancer diagnosis and I hope that once the necessary results are through your understanding about what is happening/treatment/ etc will help answer many questions you and your husband will have.  It might well  be worth writing down your questions to take to the next appointment as we found it helped jog our memory (which was often foggy at such times).  Hope you will find the forum a helpful resource. Regards Jules54

Hi Jules, my hubby's appointment has come through, he has to go on Thursday to see the urologist.  If the Cancer has spread I don't think they will operate, this is the difficult thing for me.  I suppose I feel that there is a good chance it can be cured if they can. Thank you for your advise about the list, my head is full of questions but I am sure I would forget all of them when we are with the surgeon.  Thanks again, I will keep you updated.  Lolly.

Hi Lolly

My hubby never wanted to talk about his illness and when he rarely did it was so very difficult for him to cope with the emotional fall out it caused. This forum was 'heaven sent' in that respect and I will be forever thankful that I had somewhere to 'clear my head' as there are so many understanding and lovely folk who respond.My thoughts are with the two of you as the journey continues.Jules x

Hi Lollypop,

Like Jules just wanted to wish you both all the best for tommorow.

Take care, both of you, Brian.

Hi all, Hubby had his prostrate removed on Tuesday.  The surgeon said it went well, but as his Cancer was so aggressive we won't know much until the results come back from the lab.  He is ok in himself but in a lot of pain, only to be expected I suppose.  We are looking at this as the start of a long and hopefully successful recovery.

Thanks again everyone for you support over the last few weeks. Lolly x

Glad the op went O.K.  Keeping everything crossed for good results. The hospital should give you a hard copy of the histology results if you want the detail, just ask the consultant at follow-up.  Not everybody does . Trying not to let the mind run riot is difficult , but hopefully the only way is up.

Did your hubby have an 'open'  or robotic op?  My hubby had an open op because of the great enlargement.  Post op a morphine pump for pain but was home on oral painkillers 5 days later.

I assume your hubby is now home, I hope he is more comfortable soon, if not I would get it check out.

Take care, gardenlady.

Hi gardenlady, my hubby had open, because the Cancer had spread outside the prostrate it was the only option.  He is home, but the pain is awful, he had a morphine epidural before the op which lasted for a little while but now on oral painkillers.  Hopefully he will start to feel better soon.  Thank you  for the info about the results I will definitely ask for a copy.  Regards Lolly

Hi Lolly

Good to read that your husband is through the surgery and home (think recovery is helped by being in home surroundings). Am not surprised he still suffering the pain as am sure it was quite an ordeal and it will take time to heal.  Having said that there are many effective 'pain control' regimes that can be put in place if his current tablets are not working fully (my husband had several changes before they found the right dose/combination that worked for him).  Weekends are always difficult but would certainly contact his GP/medical support tomorrow if needs be as he will recover more quickly if his pain is controlled.  Hope when the follow up appointment comes you will be looking at the best possible news. Sending virtual hugs. Regards Jules x

Hi Lolly,

Thanks for the update. I bet you are both glad the operation is now behind you. Hope you are able to get the pain under control and that your husband is soon feeling better.

Take care, best wishes, Brian.

Hi Lollypop,  wondering if your husbands more comfortable now and how you are too?  Not easy having your world turned up-side-down.

My hubby found going out and about o.k. with the 'bag' but could not be far from a comfort stop for several weeks after its removal which was inconvenient!!

Take care, gardenlady.

Hi, garden lady, hubby feeling a little better every day. Still very painful.  He has found the top of one of his legs is numb, pins and needles so very uncomfortable.  I thought maybe it is nerve damage but not sure will check with the hospital on Tuesday when he goes for a scan.  We went for a little walk yesterday to the end of the road wich seemed to cheer him up a lot.  Every day brings new challenges but we knew it was going to be a long road.  So whatever "The Cancer" wants to throw at us.   We are ready!!! Thanks for your good wishes it means a lot to me.   Lolly x

Hi Lollypop, Glad hubby is feeling a little better.  Numb legs/ thighs does not sound normal post op pain. Could be a trapped nerve but  -  don't wish to scare you both but is your hubby still on DVT post op prevention?  The execise will help with this. Might be a good idea to get this checked out before Tues.

Sorry to be so bossy, just a thought.

Take care, gardenlady.

Hi Lollypop, Glad hubby is feeling a little better.  Numb legs/ thighs does not sound normal post op pain. Could be a trapped nerve but  -  don't wish to scare you both but is your hubby still on DVT post op prevention?  The execise will help with this. Might be a good idea to get this checked out before Tues.

Sorry to be so bossy, just a thought.

Take care, gardenlady.