Hi sorry for not replying sooner, sometimes things a bit chaos in our house, my wife was diagnosed with dementia and motor neurone couple of weeks ago and couple of days ago told not that she's got a brain disease instead yesterday told its Alzheimers, NHS have made a mistake again. The thing is that I've got cancer on palliative care since Feb 2016 and I'm my wife's carer, things can seem bad but we always look that we alive and fighting and going to keep fighting it'll probably win but not easily.. Find things you like to do enjoy things. Remember you don't know yet?? Even if it has you'll have options on what you want to do. Best wishes for your future.

Billy 

Thank you for your reply.

I know there's so many going through this and many worse than myself. I go to groups and there's always someone worse off, I don't know how they cope.

Best wishes to you both

Update....

Went to my appointment, no examination...

Felt like all I got was a lecture of living in the past and imagining the worst....

I may be cancer free but I may not be, I hope I am as nothing was done today!

What now?

So sorry - just seen your update. I wonder why no examination or anything? Hopefully take as a good sign or perhaps get back in touch and push for more info? 

So sorry - just seen your update. I wonder why no examination or anything? Hopefully take as a good sign or perhaps get back in touch and push for more info? 

I've spoken to my GP who referred me, she couldn't believe how it went either. 

Good thing is the new pain seems to be settling so hopefully all good. However if things get worse again I will let them know.

Hope you both get good news soon.

Really don't think consultants get just how bad we feel, I've been in tears so many times expecting the worst even before I get into the room.

Keep strong, it's all we can do. We are fighting to live so please don't think suicidal thoughts.