Bless you hon. What a rollercoaster you’re continually going through. All I can say is that I hope it turns out to be nothing and I’m glad you’re being seen straight away. I can’t relate to your experiences as a patient but I can relate in some ways being a carer for my husband and know exactly what you mean about living under a black cloud. I also can relate to the feeling of expecting the worst all the time too. Every time my husband and I see his consultant it just seems to be more and more bad news. I sincerely hope this is not the case for you now and you get the reprieve you deserve. 

When is your consultant appointment? Let us know how you get on and I’m sure others will respond to your post soon x

Thank you for your reply.

My appointment is tomorrow!

And again my mind is thinking all the worst things..... like why am I getting seen in a few days.... maybe they had spaces or maybe they are worried too.

I could just sit and cry but I know when I go, I will either be devastated or on top of the world when I leave. Anxiety is 10 out of 10 at the moment, I could be sick but I'm trying to keep busy and tell myself it could be something and nothing.

Hi there,

so sorry for the late reply - I’m struggling to find the time to keep up with things at the moment but I will always respond when I can. 

How did your appointment go?

i understand your anxiety levels. We’ve just seen Will’s oncologist now - no scan results or anything, just a catch up this time, as going in after a scan for us tends to be nothing but bad news and I end up breaking down. And my head takes me to places like considering suicide - not particularly helpful!

Good luck x

Hi there,

so sorry for the late reply - I’m struggling to find the time to keep up with things at the moment but I will always respond when I can. 

How did your appointment go?

i understand your anxiety levels. We’ve just seen Will’s oncologist now - no scan results or anything, just a catch up this time, as going in after a scan for us tends to be nothing but bad news and I end up breaking down. And my head takes me to places like considering suicide - not particularly helpful!

Good luck x