8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Actually not too bad at the moment, I think the new doctor is a little more positive and has given her hope , thanks for asking 

    yes I have pre op tmrw then go in 7am Tuesday… they have told me to expect 6-8 hrs in surgery and at least a week in hospital..I liked the sound of getting home sane day much better xx

  • Offline in reply to calyxa

    I'm glad her new doc is more positive.

    I'm sorry it's such a long surgery. I will be thinking of you all day. I was in for 2 days but I was always told I'd be in at least overnight. It's hard being stuck in hospital or being told you will be but sometimes it's the right place to be x

  • Are you ok? Sending hugs. 
    glad your sisters new doctor is being positive. That will hopefully do wonders for her as it’s so easy to get negative quickly when dealing with medical issues. Understandably. Keeping everything crossed for your sister. 
    The good thing about bein is hospital is the medication. When I was taking a wee dose of pain killers I would blink and 3 hours had passed. So take them all! 
    will you be in the same hospital as your sis?x 

  • Offline in reply to Lyns21

    Absolutely, just want this thing out now as it’s limiting everything… just getting in the way of life  x

  • She’s up and down tbh, but since the new dr thankfully it’s up…as Lyns said sometimes you have to be in the hospital… fingers crossed the stronger chemo works luckily she isn’t in any pain at all… I think I might be as I am such a wimp! We are about 1.5 hrs apart …hospital wise but she may end up at mine if the MDT approve as she needs TPN and they train to be able to do at home x

  • Offline in reply to calyxa

    Hey calyxa. Just wanted you to know that I'll be thinking about you over the next couple of days and sending you tonnes of positive thoughts. Your surgery sounds daunting and a long stay in hospital can't be much fun, but everything is moving in the right direction, and hopefully, once it's over, you'll be on the home straight. I fully appreciate that everything that's happened to your sister must play on your mind, but it doesn't mean you're in the same boat. I was just about to say take it easy, but you'll have no choice! Speak soon (no rush!) XX

  • How is your recovering going? I’m day 5 recovery now. Completely off painkillers. Managed a 15 min walk/shuffle last night and this morning with the dog. Dressings all off and airing, still have not worn trousers or regular clothes. Had my second shower today which makes me feel better. Still tired but eating and drinking fine and managing the bathroom quite ok. Managing small household chores like the dishes etc. incisions are healing nicely, the one at my belly button is certainly the biggest but even that is about 1cm below it. Still feel like someone has been digging about with a trowel in the pelvis but the gas pain is gone. Getting better each day but I’m getting bored of being at home! Hope you are well on the road to recovery too x  

  • Glad to hear you're making good progress. I started to feel a lot more comfortable yesterday, as the shoulder tip pain has more or less gone. I haven't needed any painkillers so far today, and although my belly button area is quite tender, it's manageable. I do keep getting colicky, gas pains in that area, but nothing too bad. The bruising is more obvious today and I've got a swollen bulge above my belly button that I'm assuming is normal and will go down in time. I can't say I had a completely flat stomach in the first place, but it's quite noticeable at the moment when I stand side on in the mirror. I'm going for another shower in a minute and will then embark on my first outside walk. I'm getting really restless and, even though I'm a bit slow and tired at the moment, I'm not enjoying sitting around doing nothing. I'm usually out and about all the time, so it's quite annoying not being able to do all my usual stuff. I'm conscious, though, of not doing too much too soon. X

  • We sound very similar in the not being able to sit around. Even being able to potter about in the garden is difficult as I just want to start weeding or hoovering when I’m indoors. Haha. Are you managing to wear normal clothes and trousers? I am still in my dressing gown at home or my long dress’s when out and about. I am too nervous to put on even underwear incase it rubs on the incisions x 

  • Hello,  I am still away and not sure what is going on with my phone but I hadn't realised lots of posts had been shared. I'm glad everyone is doing so well. I appreciate you starting this chat off Jembers and for everyone sharing their stories, I can't tell you all so much how it has helped me, I will always appreciate everyone's honesty, compassion and friendliness. Please keep sharing updates on your progress everyone xx