8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Offering hugs. I'm sorry it's such a fretful time. I really do hope it's benign x

  • Thank you. I just want to get this dealt with as soon as possible. Can't think about anything else. x

  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Oh same, I google everything. We know we shouldn’t but almost too hard to stop myself. I seem to have run out if things to Google finally. I’m glad your MRI is before Xmas. At least that is a relief that it will hopefully get looked at between Xmas and new year, fingers crossed for answers very early in 2025 for us. 

    Was it a GP who told you blood results? Or a gynae? My GP has terrible bedside manner, albeit seems to be doing great at admin of getting me seen. I am so looking forward to getting an appointment with a gynae specialist. 

  • Hi, I got my blood test results from the hospital. The result has really worried me because even though I know that benign cysts can elevate your results, it also means a bigger chance of malignancy. I really don't know what to do with myself at the moment. I keep hoping that my lack of symptoms is a good thing, although now I know it's there, I keep getting aches and pains!! If I hadn't gone to the doctor with that tiny spot of bleeding, I'd would never have known about this and would be getting on with my life without a care in the world. Now I keep thinking I'm going to get terrible news and I feel sick with worry. Sorry to be so morbid :( x

  • You aren’t alone. Mine was found by accident and every day since I’ve known about it I can almost feel it inside of me. Every twinge I’m back thinking about it. I had no idea of it before then! It’s a horrible feeling and the days feel like months at the moment. The only thing keeping me sane is getting out, walking walking walking. In nature in every weather. No phone and just try and relax, even better if someone can come with me. 
    just know you aren’t alone. I’ll be checking in on you!x 

  • Thank you so much. I'll be checking in with you too. My husband is propping me up, although he is worried too obviously. I'm must stay off google and try to distract myself as much as possible. No easy though! X

  • Members I had to write in here to tell you I just got my MRI appointment through, it is the 23rd December too! I’ll be thinking of you, can’t believe same day. How are you feeling? 

  • Hey, was just thinking about you today and was wondering if you'd heard anything yet! I'm not going to lie, I'm a nervous wreck! There is not a single minute of the day that I'm not thinking about it. I've googled way too much and I'm just making myself sick with worry. I have the odd moment of calm where I tell myself to just get on with it and deal with whatever is coming my way, but this is swiftly followed my complete dread. I'm glad we're both getting dealt with swiftly, but I'm also scared by it. How have you been coping? X