8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • In hospital did they give you post operative pain relief beyond paracetamol? Because I was hardly allowed paracetamol.

  • They didn't send me home with anything! I was just given a load of advice notes on what pain relief to use and wound care. It advised that I take paracetamol every four hours and some info about how to avoid DVT!

  • I had fentanyl in the hospital when I woke up. A lot of it. And then sent home with dihydracodiene. I’m back on the paracetamol now. 

  • Ah that's good advice, thank you. I'll try it. I have terrible anxiety anyway so googling is probably the worst thing I can do all day my GP did say it can be raised and not be cancer  it can be low and still be cancer so I did wonder what the point of it was lol! I just want the pain gone now, it's been constant for nearly 2 years with all the simple cysts and now it's even worse  which might be on my head knowing there's a complex cyst there.... hope you are all doing well!  

  • That's a really lovely thing to say cloudy. I was just looking for a bit of reassurance and to see if anyone else had any experience of the same thing. If it hadn't been for you and Lyns coming forward and telling me your stories, I'd have probably just quietly disappeared and continued googling like a maniac! I will be forever grateful to both of you. I'm not too bad at the moment. I've just removed my dressings and had a shower. So far, so good. I'm amazed at how tiny the incisions are, considering what they had to get out. I'm still shuffling around like an old woman, but it's only been a day so far, so I'll try not to complain too much! How about yourself? X

  • Sames! So grateful. 
    my dressings are staying on until tomorrow, my partner and my son are away for the night so I am alone in the house for the first time and just don’t fancy taking them off alone. 
    I am still a bit shuffly too but today so much better than yesterday so I am hoping it keeps moving forward in the right direction day on day. Tbh I’m getting a little bored. I hung up the washing today and did some dishes. I’m not a very good patient. Haha x 

  • Actually not too bad at the moment, I think the new doctor is a little more positive and has given her hope , thanks for asking 

    yes I have pre op tmrw then go in 7am Tuesday… they have told me to expect 6-8 hrs in surgery and at least a week in hospital..I liked the sound of getting home sane day much better xx

  • I'm glad her new doc is more positive.

    I'm sorry it's such a long surgery. I will be thinking of you all day. I was in for 2 days but I was always told I'd be in at least overnight. It's hard being stuck in hospital or being told you will be but sometimes it's the right place to be x

  • Are you ok? Sending hugs. 
    glad your sisters new doctor is being positive. That will hopefully do wonders for her as it’s so easy to get negative quickly when dealing with medical issues. Understandably. Keeping everything crossed for your sister. 
    The good thing about bein is hospital is the medication. When I was taking a wee dose of pain killers I would blink and 3 hours had passed. So take them all! 
    will you be in the same hospital as your sis?x 

  • Absolutely, just want this thing out now as it’s limiting everything… just getting in the way of life  x

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