8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • I'm not losing weight as much as I was which is good as it was unsustainable though i had a good cushion to lose. My partner's doing okay health wise but I'm not in the best mood with him. I'm wondering if part of that is that now he's out of the immediate woods I feel permitted to resent some of his excesses.

    Anyway, missus, you're not long enough out of surgery to be worrying yourself about us. Go do something nice to distract you from the discomforts

  • I had bigger incision than you which might be it. Mines is about 5 inches long down from just below my belly button. No keyholes. I've only got one ovary left which they had to rescue too. I'm grateful not to have gone through menopause before 40 and it's still chugging away at 43 now.

  • I was glad to keep my second ovary albeit she did say had to shave it to get the dermoid wall off, so it’s likely not in the best shape! 
    glad you are doing a bit better and I would feel resentful if it was me too. Your feelings are valid! Thank you, away to try and eat something. Will keep in touch x 

  • Been thinking of you today. Hopefully you will be heading home soon x 

  • Hey, I'm back! I was second on the list for surgery this morning, and I think I went in before 9am. Everything went to plan and I've just got home. Sitting here reading all the paperwork. My belly feels a bit solid and I've got shoulder tip pain, but generally quite good. How about yourself? X

  • I'm so glad you are both through it and I'm hoping you will heal quickly. I assume they've taken cautionary biopsies? My partner's took about 6 weeks to come back recently so I'd assume all labs are around that currently but it might be according to area.

  • Offline in reply to Jembers Unpublished Reply

    I'm so glad you are both through it and I'm hoping you will heal quickly. I assume they've taken cautionary biopsies? My partner's took about 6 weeks to come back recently so I'd assume all labs are around that currently but it might be according to area.

  • Hey Lyns, hope you're well. They didn't take biopsies during the operation, but the cyst will be sent to the lab to be examined. I was told by my pre-op nurse that they do that for absolutely everything. I was told it should be about 2 weeks before I get the results back. Hopefully, it will just be a good old fashioned dermoid like they've said. Thanks for checking in on me. X

  • Hi Cloudy, I hope you are recovering well. Thanks for your message and for sharing lots of information this is so helpful. No surgery date yet, the hospital rang this morning for me to go for pre med next week but I've gone away for a few days so can't do next week so have an appointment for 23 July. I'm in for full hysterectomy and ovaries and fallopian tubes  and have been told I will be in for a few days. Bag is packed and ready but I really appreciated your suggestion of things to take as I didn't have all of them in my bag. Take care everyone. Xx

  • Glad to hear that you are home, both you and Cloudy have really had to wait so I'm glad to hear that surgery is completed for both of you and you can now begin the recovery process. Wishing you all a lovely weekend x

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