Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Ah that's good advice, thank you. I'll try it. I have terrible anxiety anyway so googling is probably the worst thing I can do all day my GP did say it can be raised and not be cancer  it can be low and still be cancer so I did wonder what the point of it was lol! I just want the pain gone now, it's been constant for nearly 2 years with all the simple cysts and now it's even worse  which might be on my head knowing there's a complex cyst there.... hope you are all doing well!  

That's a really lovely thing to say cloudy. I was just looking for a bit of reassurance and to see if anyone else had any experience of the same thing. If it hadn't been for you and Lyns coming forward and telling me your stories, I'd have probably just quietly disappeared and continued googling like a maniac! I will be forever grateful to both of you. I'm not too bad at the moment. I've just removed my dressings and had a shower. So far, so good. I'm amazed at how tiny the incisions are, considering what they had to get out. I'm still shuffling around like an old woman, but it's only been a day so far, so I'll try not to complain too much! How about yourself? X

Sames! So grateful. 
my dressings are staying on until tomorrow, my partner and my son are away for the night so I am alone in the house for the first time and just don’t fancy taking them off alone. 
I am still a bit shuffly too but today so much better than yesterday so I am hoping it keeps moving forward in the right direction day on day. Tbh I’m getting a little bored. I hung up the washing today and did some dishes. I’m not a very good patient. Haha x 

Actually not too bad at the moment, I think the new doctor is a little more positive and has given her hope , thanks for asking 

yes I have pre op tmrw then go in 7am Tuesday… they have told me to expect 6-8 hrs in surgery and at least a week in hospital..I liked the sound of getting home sane day much better xx

I'm glad her new doc is more positive.

I'm sorry it's such a long surgery. I will be thinking of you all day. I was in for 2 days but I was always told I'd be in at least overnight. It's hard being stuck in hospital or being told you will be but sometimes it's the right place to be x

Are you ok? Sending hugs. 
glad your sisters new doctor is being positive. That will hopefully do wonders for her as it’s so easy to get negative quickly when dealing with medical issues. Understandably. Keeping everything crossed for your sister. 
The good thing about bein is hospital is the medication. When I was taking a wee dose of pain killers I would blink and 3 hours had passed. So take them all! 
will you be in the same hospital as your sis?x 

Absolutely, just want this thing out now as it’s limiting everything… just getting in the way of life  x

She’s up and down tbh, but since the new dr thankfully it’s up…as Lyns said sometimes you have to be in the hospital… fingers crossed the stronger chemo works luckily she isn’t in any pain at all… I think I might be as I am such a wimp! We are about 1.5 hrs apart …hospital wise but she may end up at mine if the MDT approve as she needs TPN and they train to be able to do at home x

Hey calyxa. Just wanted you to know that I'll be thinking about you over the next couple of days and sending you tonnes of positive thoughts. Your surgery sounds daunting and a long stay in hospital can't be much fun, but everything is moving in the right direction, and hopefully, once it's over, you'll be on the home straight. I fully appreciate that everything that's happened to your sister must play on your mind, but it doesn't mean you're in the same boat. I was just about to say take it easy, but you'll have no choice! Speak soon (no rush!) XX

How is your recovering going? I’m day 5 recovery now. Completely off painkillers. Managed a 15 min walk/shuffle last night and this morning with the dog. Dressings all off and airing, still have not worn trousers or regular clothes. Had my second shower today which makes me feel better. Still tired but eating and drinking fine and managing the bathroom quite ok. Managing small household chores like the dishes etc. incisions are healing nicely, the one at my belly button is certainly the biggest but even that is about 1cm below it. Still feel like someone has been digging about with a trowel in the pelvis but the gas pain is gone. Getting better each day but I’m getting bored of being at home! Hope you are well on the road to recovery too x  

How is your recovering going? I’m day 5 recovery now. Completely off painkillers. Managed a 15 min walk/shuffle last night and this morning with the dog. Dressings all off and airing, still have not worn trousers or regular clothes. Had my second shower today which makes me feel better. Still tired but eating and drinking fine and managing the bathroom quite ok. Managing small household chores like the dishes etc. incisions are healing nicely, the one at my belly button is certainly the biggest but even that is about 1cm below it. Still feel like someone has been digging about with a trowel in the pelvis but the gas pain is gone. Getting better each day but I’m getting bored of being at home! Hope you are well on the road to recovery too x  

Glad to hear you're making good progress. I started to feel a lot more comfortable yesterday, as the shoulder tip pain has more or less gone. I haven't needed any painkillers so far today, and although my belly button area is quite tender, it's manageable. I do keep getting colicky, gas pains in that area, but nothing too bad. The bruising is more obvious today and I've got a swollen bulge above my belly button that I'm assuming is normal and will go down in time. I can't say I had a completely flat stomach in the first place, but it's quite noticeable at the moment when I stand side on in the mirror. I'm going for another shower in a minute and will then embark on my first outside walk. I'm getting really restless and, even though I'm a bit slow and tired at the moment, I'm not enjoying sitting around doing nothing. I'm usually out and about all the time, so it's quite annoying not being able to do all my usual stuff. I'm conscious, though, of not doing too much too soon. X

We sound very similar in the not being able to sit around. Even being able to potter about in the garden is difficult as I just want to start weeding or hoovering when I’m indoors. Haha. Are you managing to wear normal clothes and trousers? I am still in my dressing gown at home or my long dress’s when out and about. I am too nervous to put on even underwear incase it rubs on the incisions x 

I've been wearing some baggy jogging bottoms around the house and when I went out for my first walk, I wore a dress. I had been wearing pants that sat below the belly button and then tried some that covered my belly button. I actually think the below belly button ones are more comfortable. Over the top seems to cause too much friction!

Hi, how's it going? Hope you're steadily starting to make progress. I'm feeling much more comfortable now and had an appointment at the GP yesterday to check my wounds are healing ok. I've literally just done my first sneeze since before Friday last week. No idea how I've managed to last until now, because I suffer from hayfever. I thought it would hurt, but it was absolutely fine! I'm off to B&Q to buy a new house plant in a few minutes and then I'll try to get another little walk around this afternoon. I've been thinking about calyxa and hoping she's doing ok. Hope anyone else reading this is doing ok too. X

Yeah, been thinking of you guys recovering and of calyxa. All reading and those with uncertain diagnoses too.

I'm doing okay. Need to sleep more. Shame I can't share a photo because I'd show what a nothing my scar is 4 years down the line even though it's about 6 inches long. I didn't bother with oils and moisturizer and it's still receded fine. Some people swear by biooil.

Hello! Laughing at your sneezing - I have yet to sneeze and also have hay fever. I keep grabbing my nose every time and managing somehow to still not have sneezed! Can’t believe the difference in 1 week although I am still getting frustrated at not being able to walk longer. I’m about 15/20 mins at a very slow pace and then I’m getting sore. Everything I read says after week 1 I should be walking up to 60 mins and I just am not there. I’m back to washing clothes and doing dishes and I drove for 30 mins today for the very first time. I managed but bit uncomfortable. I felt strangely anxious leaving the house after a week! Fine when I’m out. 
my incisions are really healing up well from what I can tell, the glue is drying up and starting to come away. The bruising around my belly button is getting yellow and fading. 
My worst part is injecting myself everyday - I am absolutely looking forward to not doing that anymore. I hate it. The second worst is sleeping on my back, I’m actually getting sore elsewhere on my body because I am not a back sleeper naturally! 
still having internal discomfort, mostly just dull internal feeling like someone was rooting about in there a week ago, sometimes I get the odd sharper pain, getting less and less! 
Are you managing to walk about fine now? What did the GP say about your incisions? X 

I know I wished we could share pics too! I bought silicone scar reduction gel which is the new bio oil! Not allowed to apply it for first 3 weeks though. Today is day 8 of recovery so still a while to go. X

I'm walking pretty well. A bit slower than normal, and I still feel as though I'm not quite standing up as straight as I normally would. My belly button does feel quite tight and tender, but only to be expected. The thing that I don't like is the hard bulge above my belly button. I thought I might have had a very small hernia in that area prior to having the surgery, and I did mention it to my surgeon. She didn't seem bothered or even examine me. Now it seems more noticeable and I'm hoping it's just because the area is still bruised and swollen from being cut into. I know that the inside takes way longer to completely heal than the outside, so I'll just have to hope it settles down in the next month to 6 weeks. The GP was happy with my wounds. I think from the stuff I've read that walking for 30 to 60 minutes is what can be expected at the 2-3 weeks stage. I wouldn't rush anything, just take it at your own pace. I've been managing to sleep on my side with a pillow between my knees. I can now alternate between my back and my side without it taking 10 minutes to do the manoeuvre!! Since going through the menopause, I've been a very restless sleeper and overheat really easily, so being able to change position is quite important. I've been quite active today, but I'm feeling pretty tired now, which is a reminder that I'm still recovering. X

Heh lovely ladies, apologies for the late reply… had my surgery on Tuesday and it took 9 hrs! Been pretty much out of it for the last few days but I think I am now turning a corner… got quite a large would with 50-60 staples and stitches and still in hospital but they hope I can get home Monday… Steve (the lump) was quite big and will now go to be tested so fingers crossed that is good news too x

Hi Calyxa, lovely to have an update from you, I've been thinking of you. Take it steady as you recover, that's a lot of staples. So glad that Steve has been removed, I will keep everything crossed for you. Hope your sister is keeping as well as she can to. X