8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Still holding off booking a holiday at the moment. If waiting times in England are accurate, I'm assuming I will get my op in May. I'm not sure how long prior to surgery they call you in to discuss things, but I'd like to think I'll get some prior warning and not just receive a letter telling me it's happening next week! I also need to get some idea of the recovery time before I start planning anything. Take it easy and keep me posted. X

  • Is that waiting time for the actual surgery or to just get the meeting? I was told I would need to go in and see a consultant for a chat before. 
    I so hope they can do it keyhole, I have a 10 year old so can’t be off my feet for too long! 
    I’ll keep in touch x 

  • I was doing the school run but nothing heavy after a couple of weeks. After 4 I was fairly normal.

  • Mine was 10cm so they couldn't do it keyhole. I had a vertical incision and it's not so bad a scar now. I had a 3 year old and a 6 year old. I don't know what I'd have done without my partner.

  • You know what?, I'm not entirely sure whether that's 18 weeks to get surgery or 18 weeks to see someone about the surgery!!! Lets hope it's to get actual surgery. Hey Lyns21! Thanks for the info. I'm hoping mine will be keyhole. Because I'm 52 and have gone through the menopause already, I think they'll take both my ovaries and fallopian tubes. Hopefully, the recovery time will be fairly swift. I'm a healthy weight and reasonably active, so I'd like to think that will help. X

  • 4weeks! Really? Oh goodness I was hoping after 1 I’d be able to function enough to look after him. Where is your vertical incision? Is it just one or do you have a couple and one larger one to take it out? Thanks for replying. 

  • I’m the same with health and weight so hoping for an ok recovery. I know im losing one ovary at least. I’m going to call today or tomorrow and ask where I am on the waiting list. I think they must be sick of me over there. Haha. 

  • I just have the one incision. It's starts about 2 inches below my belly button and stops at my bikini line. I think I'd have healed faster if my kids had been a bit older and had understood that they couldn't pull me about straight away. You could probably function well enough after a week as long as you don't over exert yourself. It's not too different to having a cesarean and people have to look after newborns straight after that.

  • I called today just to see where I am on the waiting list and she said they had just scheduled me a meeting with the gynae in clinic on 10th march. So not long! No idea when I’ll be in for surgery after then. Waiting game. X 

  • Thank you that’s really helpful. I guess whatever way they get it out I’ll be grateful to have it gone. Sometimes I get so much pressure pain from it. I can’t wait to not have that! 

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