Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Hello! 
Oh I’m so glad to read you are feeling more relaxed with things. I wonder when you will hear something. Are you still holding off booking a trip? 
I actually seen my mri the other day, my gp showed me it, it is huge, or certainly looks it, takes up a third of my pelvis although measurements are as before, 76x83x40something. It was so strange to see. No teeth! Haha.

i got an apology letter for the mistake I had in receiving wrong info, they said because of it they would try fit me in sooner. I am hopeful to at least have a chat with someone by end of April! 
keep in touch x 

Still holding off booking a holiday at the moment. If waiting times in England are accurate, I'm assuming I will get my op in May. I'm not sure how long prior to surgery they call you in to discuss things, but I'd like to think I'll get some prior warning and not just receive a letter telling me it's happening next week! I also need to get some idea of the recovery time before I start planning anything. Take it easy and keep me posted. X

Is that waiting time for the actual surgery or to just get the meeting? I was told I would need to go in and see a consultant for a chat before. 
I so hope they can do it keyhole, I have a 10 year old so can’t be off my feet for too long! 
I’ll keep in touch x 

I was doing the school run but nothing heavy after a couple of weeks. After 4 I was fairly normal.

Mine was 10cm so they couldn't do it keyhole. I had a vertical incision and it's not so bad a scar now. I had a 3 year old and a 6 year old. I don't know what I'd have done without my partner.

You know what?, I'm not entirely sure whether that's 18 weeks to get surgery or 18 weeks to see someone about the surgery!!! Lets hope it's to get actual surgery. Hey Lyns21! Thanks for the info. I'm hoping mine will be keyhole. Because I'm 52 and have gone through the menopause already, I think they'll take both my ovaries and fallopian tubes. Hopefully, the recovery time will be fairly swift. I'm a healthy weight and reasonably active, so I'd like to think that will help. X

4weeks! Really? Oh goodness I was hoping after 1 I’d be able to function enough to look after him. Where is your vertical incision? Is it just one or do you have a couple and one larger one to take it out? Thanks for replying. 

I’m the same with health and weight so hoping for an ok recovery. I know im losing one ovary at least. I’m going to call today or tomorrow and ask where I am on the waiting list. I think they must be sick of me over there. Haha. 

I just have the one incision. It's starts about 2 inches below my belly button and stops at my bikini line. I think I'd have healed faster if my kids had been a bit older and had understood that they couldn't pull me about straight away. You could probably function well enough after a week as long as you don't over exert yourself. It's not too different to having a cesarean and people have to look after newborns straight after that.

I called today just to see where I am on the waiting list and she said they had just scheduled me a meeting with the gynae in clinic on 10th march. So not long! No idea when I’ll be in for surgery after then. Waiting game. X 

I called today just to see where I am on the waiting list and she said they had just scheduled me a meeting with the gynae in clinic on 10th march. So not long! No idea when I’ll be in for surgery after then. Waiting game. X 

That's good to know. I feel like our appointments and results have come at roughly the same time so far, so I'm hopeful now that I might also be seen in March to discuss what needs to be done! X

Hello!

Thought I'd add my update after piggy backing on this thread earlier.

I had a PET scan in December which did show active cells.

On 8th Jan I had a laproscopy to try and remove the mass but that was unsuccessful due to adhesions.

So on 11th February I had major open surgery where they were able to biopsy it and remove a fair chunk.

They removed a mass about the side of a matchbox but I found out yesterday there were no cancerous cells in it at all!!

The surgeons had been so sure it was cancer I expected to be told about further treatment yesterday. But I've been told no cancer!

I'll have repeated scans for 3, 6, 12, 24 months just to make sure nothing sinister grows back.

I hope you are both ok and get your good results soon too x

I'm so glad they didn't discover anything sinister and I'm glad that they're being cautious and giving you regular follow ups. You must be so relieved

That's such great news you must be very relieved ,did they say what happened to the active cells ,I'd be wondering if it was me ,but well done you for getting through all that with a good outcome .

Yeah so I had a huge amount of inflammation where the nodular cyst couldn't break out of all the adhesions I have in my pelvis from 2013 surgery. It's a mess in there apparently. They had 3 Professors check it as they were so surprised but it always came back clear!

So the PET scan showed partial uptake at the time, and they have said that was due to the inflammation. Even bleeding cysts can glow on a PET scan so you can get false positives.

You can't get better than 3 Professors checking for you , they will understand much more than we ever will and its amazing they've given you the all clear ,and also that they will be checking for any signs of anything wrong ,Its so good to hear a good outcome story .

That's interesting. My partner has stage 4 cancer and gets regular PET scans. I didn't know you could get false positives.

Sorry you've had the adhesions and the cyst. Just glad it's come back negative through multiple observations.

That’s such great news that it’s nothing sinister, you must feel a new lease of life after being told to expect cancer news. How’s your recovery been with the attempted laparoscopy and the open surgery? Hope you are well on the mend. Sounds like you have had great care and lots of people checking x 

Thank you! Yeah it's such a relief I feel very lucky. Was fully expecting to spend the next few months in radiotherapy/chemo.

I kept asking them "are you SURE" haha

Recovery is going ok. It's a big 8-10 inch vertical cut so once I had the staples out I could move and sleep a bit better. Some areas of it have gone a bit funky so I've had to have antibiotic cream and the scar still looks very angry but some bits are really well healed now.

It took me 2 weeks to be able to properly look at it as I felt like a giant Christmas ham stapled together! But it's improved so so much in just 3 weeks I'm pleased.

I've been getting out for short flat walks and even managed a glass of fizz with my feet up yesterday after the good results!

Compared to the radical hysterectomy I had in 2013 this has been easier even though I had the failed laproscopy only a month before x