Hi my prostate cancer was T3b or regional localised prostate cancer . My Gleason score was 4=5 =9 . I am having 3 years of hormone treatment and have just completed 37 fractions of radiotherapy . I used to work for the NHS and recently started as a medical journalist so may be of help to you /others just ask and good luck . My psa has dropped from 32 to about 1 and should fall to almost zero . You really need to be treated asap !!!

Hi to @tonybear,@billygoat and @telemando ​​​​​​

thanks for the introduction, found some useful information on here from you guys.

i saw from another post that you has t3b, at what age were you diagnosed? And when did you have your  prostrate removed?

did you have any symptoms of bone pain or fatigue?

i was initially led to believe it was t2c which would have matched the 7.6 PSA but then got a 5 on MRI and have a lowing Gleason. They talked about possibly having radiotherapy after prostrate removed or hormone treatment.

what were your timescales?

Hi zinzan i never put my readings down it might surprise you my psa was 1581 gleason 8 stage 4 T3b it went from the prostate to the lymph nodes then pelvis, spine, ribs and a lung that was over three years ago psa now is 0.8 still got C in lymph nodes and bones if it spreads you can live with it. So don't panic. Best wishes. 

Billy

P.s I've still got prostate no good operating when it's gone so far. 

Hey billy, thanks for the post, that makes me feel more positive. Yesterday thought the jump from t2c to t3b was an enormous jump but seeing other people's situation and positive position is making me think differently.

what was your treatment?

Hi I'm on permanent hormone therapy inj every 12 weeks i had 6 sessions of docetaxel cemo to start with as psa rises then more chemo to take it down again,. Also on tablets (hormones) medroxyprogerome, it takes some saying two daily..

Billy 

Thanks for answering, feels like I am asking very personal questions from someone I have never met, thanks for sharing!

At the same time I had blood tests, the doctor told me I had high sugar in my blood and close to diabetes, is there any link you know about with prostate cancer?

Hi i don't have problem with sugar but one of the others might have, remember one thing going wrong with your body can change other things, i had three blood tests for the same thing all tests came back different Dr sent me to specialist because she had no idea what to do. 

Billy 

Hi i don't have problem with sugar but one of the others might have, remember one thing going wrong with your body can change other things, i had three blood tests for the same thing all tests came back different Dr sent me to specialist because she had no idea what to do. 

Billy 

Hi Billygoat.

Blood tests can only measure a substance at the specific moment when the blood was taken. Since we're all living, breathing beings, it is to be expected that we'll get different results at different times.

I have a major issue with blood pressure measurements. My BP goes up and down like a yo-yo so getting an accurate measurement is a nightmare. It has caused me numerous problems over the last 40 years - including getting my radical prostatectomy cancelled - twice!  For the third attempt I needed to take so many tablets to force my BP down to a stable low reading that I was like a zombie in the days before surgery!  (but no one noticed the difference).  Then when they took my BP the following day it was below 100/60 and they were worried that it was too low!  Fortunately, they took it a second time and it had risen slightly so no panic.  

Hi telemando 

Before they knew about the cancer i was having loads of other tests I was having shortness of breath as soon as I did anything they booked me in for a treadmill test, connect me to a machine and see what readings were, never done nurse couldn't find BP she tried three times both arms she checked her self said it was working OK, went to get specialist he couldn't get any thing either (i know i was still alive i think) in the end they connected me to m/c wires everywhere all i got was,, ooh,, they never told me anything next week letter from doctor for some heart tablets, that was a bit of a shock.. How are you doing with your problem.

Billy 

I've found a few tricks which help with my BP.  I'm normally on two tablets of Lisinopril a day, and I usually take one in the morning and the second in the evening, plus one tablet of Bendrofluazide which I also take in the morning.  I've been on this for around 10 years, and I think it's probably calmed down the worst excesses of my high BP. 

If I know I'm going to have an "important" BP test then I'll take all three tablets at once, 2-3 hours before the appointment time - and then resume the usual regime the next morning. That seems to work OK. 

I've got my own BP meter and when I use it and I'm relaxed, I can get acceptably low readings. However, it all just goes to pot when a doctor or nurse takes it.  It's called white coat hypertension and it's been a problem for me all my adult life. 

Hi tele it wasn't BP so much as heart had slowed down I'm on permanent fludrocortisone it's a steroid I'm only on mcg but I can do things normal know as long as im careful to much exercise I've had it (manely 5mins) thats trouble getting old. Hope your bladder sorted, good luck.

Billy 

Hi Billygoat.  My bladder cancer operation is in exactly 7 days times. I hope that this time (1pm) next week I'll be waking up in recovery.  I'll keep you posted, but meanwhile it's that strange waiting period one gets before surgery... 

Hi tele, of wish you all the best for next week. I have my Choline PET tomorrow but there saying by surgery won't be for another 5 weeks - this seems like a lifetime of waiting when you just want it taken out!

Hi zinzan 

Your lucky from finding my C to starting treatment was over FOUR months luckily it all worked fine in the end, try to consontrate on something you like to do, it does help.. 

Billy 

Hi Tele,

wishing you good luck for tomorrow 

Hi billy,

thanks for for the wise advice, tried to focus on a few things

Hi Zinzan.

Many thanks for your good wishes. I'm feeling a bit nervous now, but it'll be over before I really know it. 

Cheers

Telemando