Hi,

i was officially diagnosed yesterday although feel that I have known for some time since the testing process started back in early march. I am 54, I had a PSA score of 7.6 which is quite low except for my age. My MRI score was 5, I had a biopsy and 13 of 19 samples came back as positive. My Gleason score is 3+4. My stage is T3b. I consider myself quite healthy.

They are sending me for a Choline PET to see where else it might lead!

like others I have read lots on the web but not everything is consistent and don't know how much is relevant to my case. Yesterday was the first time that I had the chance to speak to someone, I seem to have spent the last 2 months being sent for tests rather than being able to talk and understand. I have been told that I need to have my prostate removed which is fine and I understand that, what I can't understand is why more tests and not just get on with it

i am keen for any feedback on Choline PET or anyone who has also any symptoms or experience of pain in the bones specifically thighs /pelvis  or feet or anyone with changing bowel habits and constipation or bloated stomach and excessive wind! Although I have mentioned all of these to my doctor and consultant they don't seem that interested. Originally they thought it was limited to my prostate but now with a t3b they seem to think it has gone to my seminal vesicle but I worry that it has gone further.

thanks

steve