Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • Hey Mejules

    no need to apologise. just pleased you are ok and know we are here for you if needed. 
    Now then....one cycle left.... that's amazing, have you got anything planned to celebrate getting through it. We took the kids off to Centre Parcs for a couple of days as they've not had any time away over the summer with my treatment. I also had a teeny tiny prosecco for one. 
    I'm struggling to sleep at the minute and feel like I have a very heavy arm, but I am persevering with the exercises I have been given . Next step for me is pathology results, I want to know that they got all of it. 
     

    Keep going, you are doing amazing. 
     

    X

  • Hi [@WarriorWilko]‍ 

    A warm welcome to the thread. Sorry to hear about your diagnosis. Try not to think about the what ifs, I think once you are on this cancer path you will always wonder whether aches and pains are a spread of the cancer. Somehow I'm certain we will all come to live with this and actually we are probably In a better place than most as we are in the system, it will get picked up and dealt with. Will your treatment plan be impacted by having to have further lymph nodes removed? 

    Your husband sounds ace. Mine is unbelievable actually, he has just let me do what I need to do, and taken the burden of everything else away. My children have also been amazing. But I think we are definitely looking forward to a day when I'm fit and we can do more adventurous family activities. Focus for 2020 is fitness. 
     

    Always here for a chat if needed. Insomnia is poking its little head up for me at the minute.

    take care

     

    wl

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    Hello Mejules,

    I'm sorry to hear about the pain that your treatment is causing - I shall be thinking of you on Friday, as you hang on that bell!

    I fully agree that doing the exercises regularly help to get you back on track quicker.

    I know that treatment can be a very lonely journey, but you know that you are never on your own. We are always here for you.

    I sincerely hope that things improve for you after Friday.

    Kind regards,

    Jolamine xx

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    Hi BigJean,

    It's great that you are doing so well. I hope that you get your drain out if possible, tomorrow.

    I'm glad to see that you are enjoying being back home - there really is no place like it!

    Kind regards,

    Jolamine xx

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    Hi Helen,

    Of course it is ok to join us all, although I'm sorry to hear of the reason you've joined for You will be relieved to have your lumpectomy behind you, but what a pity that they have to go in again to remove your lymph nodes. At least your margins are clear, which is good news.

    This is one of the scariest parts of your cancer journey. There are so many unknowns. It is not at all unusual for your mind to go into overdrive and for you to think the worst.

    Cancer doesn't just affect the individual with cancer, it affects the entire family. You are fortunate to have such good support in Steve. Try to keep all communication chanels open between both of you. This will help you both. Does he attend your appointments at the breast clinic with you? It is always useful if he can, particularly when you are going for the results of any tests.

    It is good news that your cancer is HER-. Do you know what grade or type of breast cancer you have?

    When I was first diagnosed 10 years ago, my mind raced ahead of me too. I have had 2 bouts of breast cancer in the past 10 years and, have had a lumpectomy and a double mastectomy. I certainly never expected to be here still and living a fulfilling life.

    I sincerely hope that all goes well for you on Thursday. Do please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

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    Hi Woolylamb

    I hope that you managed to get rid of your drain and wires yesterday and that you are feeling a little more comfortable without them.
    Kind regards,

    Jolamine xx

  • Hi Woollylamb

    good to hear from you - thank you for replying. Sorry tho it’s in the middle of the night - I hope you can get back to sleep soon too. 

    Isn't it great to have such wonderful support around us? This forum is incredible and we are very lucky too to have such amazing families. I hope too that yours have support from around you as I have been very lucky to have for Steve. Our friends have really rallied around. 

    Yes, the what ifs can be crippling can’t they? I’m reassured that I can see from previous threads that this can be the worst part of the journey. I can see that one of the things that is promoted is to take it one step at a time. The poor doctor I saw yesterday did well not to be pushed into a corner by me going down the what if route to the most catastrophic outcome. This must be one of the most challenging parts of their job!

    Here’s to our fit & healthy 2020 tho, and for your adventurous family activities! 

    Have a good sleep soon! 

    Helen xx

  • Hi Jolamine

    thank you for replying - it’s good to hear from you & to hear of your inspirational journey knowing you’re having a fulfilling life. This can happen to anyone can’t it - it’s so important to cherish what we have and are able to do whether or not we have a diagnosis. It’s certainly got me to evaluate what’s important in my life & to realise that long hours working don’t enable me to spend the time that I want with Steve. That has already changed & will continue to do so. 

    Yes he comes to all my appointments with me and clarifies & asks the doctors lots of questions for me as I find myself mute most of the time, ruminating on something they have said that I’ve picked up on and start to pick apart to find a catastrophic journey with. And you’re right about keeping the communication channels open between us. I’m hoping that he does with me although I know he’s trying to be as positive as possible (& is doing a wonderful job) We both have some amazing friends and I know they’re looking out for Steve too. 

    My cancer is a grade 2 apparently. I’m not usually so thick but some of the terminology is baffling me at the moment as I’m not used to it. I’ve understood that it’s fed by oestrogen so will be on oestrogen blocking medication as part of my treatment plan when the lymph nodes have been removed. I don’t know any more about the plan yet tho until the lymph nodes have been examined & I'm desperately trying not to analyse every twinge or imperfection and relate it to a spread.

    Thank you, & everyone, for your support. I hope to be as supportive back to you as soon as I can. 

    Sleep well soon

    Helen xx

  • hi don't be daft I'm a coward no one likes an operation but when they give you the premed it calms you as you know and you will feel like you have only been asleep 5 minutes that's what my second operation was like yes you can buy stickers or the tin I could not put it in the basket for some reason but I will call them once I get my treatment I hope you are more relaxed I'm sure you will be fine lorraine xx

  • Hi Jolamine, 

    thank you for your kind words. It’s great being home . Still not sleeping great but can cope with that . Hopefully the drain will be out on Friday. 

    Hope you are keeping well and your son is recovering well also 

     

    Kindest Regards 

    j xx

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