Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • I read a lot of things on you tube the doctors there do short videos and it calmed me down the USA are so much in front I read a margin probe it's a white device can detect cancer tissue which is great Manchester hospital has it but hopefully the whole uk and Scotland have it too mean less worry for patients and less operations for surgeons the nurse tol£ me they also have a scalpel  with a light  called i scalpol that can show surgeons where cancer cells are I also just read last week the USA and uk top scientists are going to be working together yes they are more advanced than 9 years ago  next Thursday  good just enjoy your time I watch tv listen to music clean etc I'm back up 18th of November they will tell me my treatment then I'm expecting chemotherapy now after tissue was affected still if I lose my hair again I can wear a wig lol too cold to be bald lol xx

  • The research is fantastic isn’t it. So reassuring. I haven’t read anything about the scalpels you’ve mentioned but that sounds really good. The doctor today mentioned being involved in trials etc but didn’t go into any detail. I’ll definitely be doing something to contribute to the research when this experience is behind me. Steve & I have planned to do the moonwalk so I’ll have to see how I get on with whatever treatment I need but am sure I can shake a bucket somewhere at least!

    You're right about keeping busy. I love knitting & it’s quite therapeutic really. I’ve never watched as much daytime telly as I have done over the last month - homes under the hammer every day lol! 

    Enjoy chooosing your wig if chemo is in your treatment plan. There are a lot of pretty cool ones around now aren’t there? Xx

  • I am the same I aim once my treatments is over I want to raise 500: pounds and give it to my hospital you can buy stickers or a can from the site get involved after having breast cancer twice I want to give my hospital a little ty for looking after me I do put good things like jackets clothes etc into the cancer research in town same with heart shop unwanted furniture as heart and cancer is 2 bigest things but that's good you are going to do it too have a good sleep xx Lorraine

  • Am sure everything helps & I’ll definitely be doing more of that now too. Good for you for doing plenty already! I haven’t seen what can be bought on here but will have a look now. And I’ll definitely be showing whatever gratitude I can to the team who are looking after me during this experience.

    It’s been good to talk to you tonight - it’s really helped me, thank you so much. Sorry to have been so self-absorbed - promise not to be so much like that in future posts! 

    Have a good sleep too! Xx

  • Hi warriorwilko 

    Sorry to hear you are on this journey. I had a masectomy and lymph node removal back in May and have just had my seventh chemo cycle out of eight. 

    The ladies on here have helped me more than they will ever know because they have listened to my fears, spoken openly about their feelings and made me feel like I’m not going mad when I think thevdoc is hiding things from me or every pain or ache is sinister and it’s perfectly normal to feel like this. 

    As loz said trying to keep yourself busy helps with trying to lessen the mental state we can get ourselves into. Always here for a chat if you feel you need to vent x 

    take care 

    juliet x 

     

     

  • Hello mejules 

    thank you for replying. It’s good to hear from you too & I'm sorry too you’re on this scarey journey too. I’m glad you’re nearly at the end of your chemo & I hope things are now much more positive for you. It’s been useful to read all the previous posts about chemotherapy as it’s been something (before today) that I’ve been terrified of, but I can see with all the support on here that although it does sound extremely challenging, you are all surviving it & trying to stay as positive as possible, which is incredibly inspiring and heartening. 

    To normalise some of our common fears must be very helpful as I’ve certainly felt as tho I’m going crazy over the last few weeks since I was diagnosed on the 2nd October & to describe myself as one-track minded would be very accurate. 

    Thank you for your offer of chats. I will definitely be back on here. I’ll try my best to offer some support back. Xx

  • Hey Mejules

    no need to apologise. just pleased you are ok and know we are here for you if needed. 
    Now then....one cycle left.... that's amazing, have you got anything planned to celebrate getting through it. We took the kids off to Centre Parcs for a couple of days as they've not had any time away over the summer with my treatment. I also had a teeny tiny prosecco for one. 
    I'm struggling to sleep at the minute and feel like I have a very heavy arm, but I am persevering with the exercises I have been given . Next step for me is pathology results, I want to know that they got all of it. 
     

    Keep going, you are doing amazing. 
     

    X

  • Hi [@WarriorWilko]‍ 

    A warm welcome to the thread. Sorry to hear about your diagnosis. Try not to think about the what ifs, I think once you are on this cancer path you will always wonder whether aches and pains are a spread of the cancer. Somehow I'm certain we will all come to live with this and actually we are probably In a better place than most as we are in the system, it will get picked up and dealt with. Will your treatment plan be impacted by having to have further lymph nodes removed? 

    Your husband sounds ace. Mine is unbelievable actually, he has just let me do what I need to do, and taken the burden of everything else away. My children have also been amazing. But I think we are definitely looking forward to a day when I'm fit and we can do more adventurous family activities. Focus for 2020 is fitness. 
     

    Always here for a chat if needed. Insomnia is poking its little head up for me at the minute.

    take care

     

    wl

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    Hello Mejules,

    I'm sorry to hear about the pain that your treatment is causing - I shall be thinking of you on Friday, as you hang on that bell!

    I fully agree that doing the exercises regularly help to get you back on track quicker.

    I know that treatment can be a very lonely journey, but you know that you are never on your own. We are always here for you.

    I sincerely hope that things improve for you after Friday.

    Kind regards,

    Jolamine xx

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    Hi BigJean,

    It's great that you are doing so well. I hope that you get your drain out if possible, tomorrow.

    I'm glad to see that you are enjoying being back home - there really is no place like it!

    Kind regards,

    Jolamine xx

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