My mum has been diagnosed with incurable lung cancer

Hi there guys, 

My mum has recently been diagnosed with incurable lung cancer, and has been offered chemo/radiotherapy to prolongue her life. I am having an incredibly hard time trying to process all of this, and often find myself going into states of denial. I am 21 years old, with three fantastic brothers, a loving father and a mum who has been my bestest friend. Whilst I can manage to keep myself positive and hopeful when I am speaking with my mum, as soon as I am without her completely fall apart. The doctors suggested without treatment, she would live around 8 months, and with treatment, about a year and a half. Are these predictions based off of general statistics, or on the individual patient themselves? Something I just can't get my head around, is the fact that my mum at the moment is absolutely fine, she doesn't look or feel ill, it just doesn't make much sense. I've never felt so much pain. My mum is so scared, all I want is to make it better and fix everything but i can't.

My emotions come in waves. I have a constant heaviness in my chest and a feeling of sickness, which creaps up to my throat when i'm feeling really sad, and sometimes I feel incredibly positive, full of hope and enthusiasm. Something I have found is that grieving is just like a cold; it hits you the hardest first thing in the morning, and last thing at nightime. I spend all of my days dreading nightime, because everything I have tried to shut out comes creeping back up on me, and when i wake up in the morning, remembering whats happening hits me all over again.

The diagnosis is so hard to process, because we have absolutely no control over it, you just have to carry on. It's hard to take that in.

The medical notes have said the cancer is incurable but chemotherapy will prolongue her life... do you think there is any chance she could pull through this? She has always been very skinny, so i'm focusing on bulking her up and keeping her healthy for the chemotherapy. If she responds well to the chemotherapy, do you think theres a chance she could make it? 

I am so sad for her because I know she's afraid she'll miss out on so much, so i'm pushing her to fight and stay positive, just in case theres a chance.

My heart is absolutely broken, and often those closest to you just don't know what to say. Usually when im down I go to my mum for advice and support, but under these circumstances i've been staying positive around her, and therefore not confiding in her much about this, do you think this is the best thing to do? I stumbled across this page and decided that perhaps this may be a way of getting all of this out of my head. 

 

Thank you for reading! 

Parents
  • Hi SophiaRostta,

    I was at a Public Health England conference last week where academics and medics were talking about these sort of statistics. Several patient reps and medics were very keen that these sort of statistics should have a mental health warning attached to them as they can cause so much anxiety.

    This type of prognosis is NOT in any way a prediction. As you seem to have realised, they are based on averages and should definitely not be used as a predictive tool. The problem is that us pesky patients and their families insist that our doctors give us some sort of idea about what to expect and these stats are all that are available.

    The stats don't take into account the age of the patient (the younger you are the longer on average you will survive - most, but not all, cancer patients are well past 65), the physical fitness of the patient (the fitter you are, the better your body can cope with treatment0, co-morbidities (if you have several conditions such as a heart condition, diabetes or obesity in addition to cancer you may not cope as well and most importantly the stage at which the diagnosis was made (the sooner treatment starts, before it spreads the better).

    My own case is a good example of how unreliable this sort of advice is. In late 2013 I was told that without chemo I might be around for as little as three months and if my chemo was successful I might survive 18 months, two years at most. I still have cancer but I am still alive and kicking some three years and eight months later. 

    So try not to take too much notice of these estimates - that is all they are and it would be easy to give up hope to soon.

    Best wishes

    Dave

     

Reply
  • Hi SophiaRostta,

    I was at a Public Health England conference last week where academics and medics were talking about these sort of statistics. Several patient reps and medics were very keen that these sort of statistics should have a mental health warning attached to them as they can cause so much anxiety.

    This type of prognosis is NOT in any way a prediction. As you seem to have realised, they are based on averages and should definitely not be used as a predictive tool. The problem is that us pesky patients and their families insist that our doctors give us some sort of idea about what to expect and these stats are all that are available.

    The stats don't take into account the age of the patient (the younger you are the longer on average you will survive - most, but not all, cancer patients are well past 65), the physical fitness of the patient (the fitter you are, the better your body can cope with treatment0, co-morbidities (if you have several conditions such as a heart condition, diabetes or obesity in addition to cancer you may not cope as well and most importantly the stage at which the diagnosis was made (the sooner treatment starts, before it spreads the better).

    My own case is a good example of how unreliable this sort of advice is. In late 2013 I was told that without chemo I might be around for as little as three months and if my chemo was successful I might survive 18 months, two years at most. I still have cancer but I am still alive and kicking some three years and eight months later. 

    So try not to take too much notice of these estimates - that is all they are and it would be easy to give up hope to soon.

    Best wishes

    Dave

     

Children
  • Hello DaveK,

     

    I completely agree with the suggestion of the statistics having a mental health warning. I too believe that they bring a lot of anxiety and worry. It can be very damaging to both the patient and family. Unfortunately, research on it is so accessable today that we can all find out pretty much anything we want in regards to medical statistics, and most of the time I believe we'd benefit more from not seeing it.

    I am very happy to hear that the predictions aren't entirely accurate, and after looking at your personal experience on your profile, I come away with more hope than ever before. This message has really cheered me up, please keep positive and keep going! You sound like a fighter, so don't ever give up! 

    I believe my mum is very young in this case, she is just 49 years old, so i'm hoping she can put up a good fight against it. I am really putting all my might into bulking her up a little bit, keeping her fit and keeping her spirits high! I truly believe that my mum can pull through this and I am not giving up.

    Thank you so much for the support, and keep pushing! Stay strong.

     

    Take care,

     

    Sophia :)