Endometrial cancer diagnosis

Hi, 

I just thought I would drop in and say hello I was diagnosed with endometrial cancer on Monday 30th December. All I was told is that and that I had to have a ct scan the following day, my notes say probable hysterectomy with nodes which i didnt read until today. I don't know how to feel other than being scared,  telling my family was very hard as I feel like I've let them all down. I just thought I would introduce myself and see if anyone else is going through something similar. 

Parents
  • Hi, im Keen to know your symptoms. I hope you’re doing okay and have lots of support around you? Xx

  • Hi I had an appointment with a surgeon this morning, it started in the lining of my uterus and has penetrator most of my  myometrium. She did say that there is no evidence of it anywhere else in my pelvic area although they are slightly concerned about some of my lymph nodes being prominent as they are 8mm in size. 

    My symptoms were hard to put as it started with really bad pain during my period to the point I passed out and had to sleep for a few hours after. Then my periods got longer and alot heavier with golf ball size clots and lumps. I had an ultra  sound scan and they found a small polyp (December 23) was then referred to gynaecology but the waiting list was like a18 months. I called about it and contacted the Dr's and they expedited me jn October because I was bleeding for 32 sags straight and was so very tired all the time. Went for a hysteroscopy 10th dec and a week later was called in for an mri scan then was sent a letter to see someone on the 30th dec when I was told I had cancer. 

    I have lots of family support and some of my.work colleagues,, my wife has struggled with the news but we are supporting each other and our two boys,, one of which has asd. Xx

Reply
  • Hi I had an appointment with a surgeon this morning, it started in the lining of my uterus and has penetrator most of my  myometrium. She did say that there is no evidence of it anywhere else in my pelvic area although they are slightly concerned about some of my lymph nodes being prominent as they are 8mm in size. 

    My symptoms were hard to put as it started with really bad pain during my period to the point I passed out and had to sleep for a few hours after. Then my periods got longer and alot heavier with golf ball size clots and lumps. I had an ultra  sound scan and they found a small polyp (December 23) was then referred to gynaecology but the waiting list was like a18 months. I called about it and contacted the Dr's and they expedited me jn October because I was bleeding for 32 sags straight and was so very tired all the time. Went for a hysteroscopy 10th dec and a week later was called in for an mri scan then was sent a letter to see someone on the 30th dec when I was told I had cancer. 

    I have lots of family support and some of my.work colleagues,, my wife has struggled with the news but we are supporting each other and our two boys,, one of which has asd. Xx

Children
  • Hi Claire 1980, I started getting a period at 59, my last period was 15 yrs ago when I was 44, I thought this shouldn’t be happening to me. I made an appointment with my doctor gave her my symptoms and she referred me to gynaecologist at my local hospital, I had my appointment with a ultrasound and and a hysteroscopy, in October 2024, I received my diagnosis in November 2024. That I had Endometrial Cancer, it was  a low level cancer,  I saw the surgeon and they told me that I would need an operation to have a full hysterectomy. I had my operation on the 16/12/2024 , 1week before Christmas, they told me that they have removed both of my ovaries, my cervix and my fallopian tubes out, and the lining of my endometrium where my cancer was. My surgery was keyhole robotic surgery, I was in hospital overnight and I came out the next day. I will be under the hospital for the next 5 yrs, I go to all my hospital appointments. I am glad that I had the full hysterectomy, and all the support of my family and friends. If you need to chat with me again please do so.