Hello Clair1980, 

I just wanted to welcome you to our forum - it is normal to be scared after getting the news and you only found out a few days ago so all this takes a little bit of time to sink in and you are bound to have questions racing through your mind at the moment especially as this is still a time of uncertainty when you will be needing more tests like the CT scan and there is also the question of the hysterectomy which you have read in your notes.

As you are bound to have a lot of unanswered questions at the moment and are waiting to find out the actual specifics, I would suggest you have a look at the information we have on our website on endometrial cancer which includes a section on treatment for womb cancer where you can find out more about the hysterectomy . 

I have come across many members of our community who have been diagnosed with endometrial cancer most recently Minniemouse17 who posted this endometrial cancer thread and Katie121 who mentioned today on this thread that she had a total hysterectomy after her endometrial cancer diagnosis. Have a look too at Bestall 's endometrial cancer thread as this member was also at the time a bit anxious about the hysterectomy and don't hesitate to reply to any threads you feel might be relevant to you. 

I hope that you won't have to wait too long to get all the details of your diagnosis as well as a bit of clarity regarding treatment and what the next steps might be. Keep us updated if you get a moment on what you find out. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hi. I had a diagnosis of endometrial cancer 3b and had a hysterectomy and oopherectomy last May. The had chemo, radiotherapy and brachytherapy..finished November 2024. Am trying to build up after treatment atm. Happy to chat if it helps.

Hi, I had the same stage of cancer as yourself and now at the end of my 6 weeks recovery from a total hysterectomy along and some pelvic lymph nodes. I'm about to go through the same treatment starting on Monday. I am very apprehensive to say the least. I am considering cold cap therapy but not sure if I will cope. I'm also terrified of the brachytherapy due to horror stories from people. How did you cope/ find it all? 

Hi there. I did the cold cap therapy for the carboplatin and paclitaxel cycles. I wasn't aware of it during the cisplatin cycles until a nurse mentioned it. I was lucky as it worked amazingly for me. I didn't use my wig at all and the loss wasn't patchy so not always noticeable. I used very gentle and natural hair products and only washed my hair once a week as advised. It was painful...especially the first 45mins of having it and any other people around me on different occasions asked for it to be taken off. I gather it helps with regrowth too so thought I would try especially as my autistic daughter gets so upset seeing me ill. Hoped I would look less ill to her if I still had some hair!

I had 2 brachytherapy sessions in between the 2 types of chemo. The team were sooo kind. First session didn't hurt at all. 2nd one was more uncomfortable but very quick really. I also had daily radiotherapy during chemo and brachytherapy and haven't met anyone who has experienced the same so happy to chat further. Good luck with everything x

Carbonation??? Meant...carboplatin

So I got my results today, and it was stafe 1b and grade 3 in the end, but they don't think I need any further treatment at this time. Everyone is happy for this news, and I have mixed emotions at the moment, I should feel so happy, I know, but I can't help the what-if questions in my mind and maybe I don't deserve to get off that easy when so many people have it so much harder. 

So I got my results today, and it was stafe 1b and grade 3 in the end, but they don't think I need any further treatment at this time. Everyone is happy for this news, and I have mixed emotions at the moment, I should feel so happy, I know, but I can't help the what-if questions in my mind and maybe I don't deserve to get off that easy when so many people have it so much harder. 

Hi Clair1980, my consultant told me I won’t need to have any chemotherapy, because they got it all out and it hadn’t spread to anywhere else in my body. It was contained in just one place. I am just so happy for you both. I was the same as you with mixed feelings and emotions. And all the questions going through my head. We should count our blessings that we are alive. And we everything to live for. I sometimes wonder if someone upstairs has it in for us. I would like to wish and pray for those who have been diagnosed with cancer and hope they find the cures for every single cancer disease. So that all the people can live to see there children get married and to be there for the first grandchildren.