Hi I have just finished radio therapy on my right breast and talking  to the people at my hospital a few of them have had your side affects when I asked my team about sickness they said it's quite common if your treatment is on the left side is that the case with you X 

Hello Ellie.  Thank you for that.  I'm having external radiotherapy to the pelvic area and have been told that it's possible the treatment may also be "touching" on the lower part of my stomach causing some side-effects.  Once the treatment is over though, I hope that it's not too long before my appetite comes back and makes up for these past weeks,  How are you feeling Ellie now you've finished your treatment?

Do take care.

BBx 

Hi haze44

Sorry about the gremlins!

We have posted an explanation here about what our technical wizards are doing to try to sort things out. 

Don't worry, us moderators are looking out for duplicate posts when they pop up and we will be able to remove them.

Best wishes

Jane

Hi, Jane,

Thanks for your message - I had read about the technical problems and the multiple posts (I managed to send 3 the same the other day!) but it is a bit frustrating sometimes when a nearly finished message disappears into the ether!  Never mind, I'm sure your techie wizards will sort it out in time.  The worst problem I have is that the cursor jumps about all over the place, it's a bit like 'Where's Wallie?"

You girls certainly have your work cut out keeping tabs on everything! 

Thanks again,

Hazel

Hi BB

where are you, is everything okay - did you jump on that big ship and living it up around the caribbean?  Please let me know you alright.

Big hugs and bit miffed you haven't picked me up on that boat trip :)

JB

xx

Hello JB

Thanks for your post and your big hugs; I do appreciate that.  I'm not too bad thanks.  Finished the radiotherapy on 4 December but just can't seem to get rid of the fatigue, aches and pains and tingly legs and feet.  I know others must feel the same, and some of you worse, so instead of complaining in my posts on here, I decided not to post for a while.  I had a CT scan yesterday and am due to see the oncologist on Tuesday so I'm keeping everything crossed (perhaps that's why I get so many aches and pains!!).

A few ships have gone up (and down) but not to my specifications and so I've just turned up my nose at them until something suitable comes along for us (!!).  As soon as it does, I'll come round and pick you up and off we'll go for a few months.  The Caribbean sounds lovely and I've always rather fancied the Panama Canal and perhaps Hawaii for good measure?

I hope things are as well as they can be for you.  Let me know how you are (and if you need another suitcase).

Do take care and keep your sealegs handy.

Love BB xx 

Hey BB 

Awesome to hear from you and you can complain whenever you like but yes I understand where you coming from. Shame I heard from other people fatigue is the biggest affect from radiotherapy! Hang in as it does sounds like you coping as well as possible considering the circumstance. I too have aching feet, hands and lower back and mentally have been struggling to keep positive but I'm getting there and guess it helped that my first scan gave me great news of being clear!! Lol I'll do the crossing for you how about that? 

Hmmm I trust your choice in ship so we will wait for the perfect one to pass by, my suitcase remains packed and ready to go when you give the shout!! Yes regularly cleaning my ears so I don't miss your yell haha

Stay strong friend I'm still with you every step of the way 

Big hugs always

JB

Hello JB and thanks so much for replying so soon. I'm SO glad to read that your first scan gave you the great news of being clear.  It must have been so emotional for you after all you'd been through.  At times like that it is certainly worth the months of treatment and after-effects.  But I'm sorry you're still having difficulties with pain and trying to keep positive but, as you say, we are getting there slowly but surely and at least we are still here to complain!  I put some washing out this morning and even the tops of my arms as well as my wrists are aching now where I reached up to peg it.  I suppose the only answer is not to do washing (therefore no ironing; what a good idea) unless absolutely necessary.

Yes,do keep your ears on alert for "the yell" and we'll be off!

Do take care and thank you for your kind words.

Love BB xx 

Hey BB not heard from you or seen any activity for a while.  I just want you to know I'm thinking of you and hope you ok

JB X

Hello JB. Thanks so much for your kind words.  I've not posted as I feel a bit sorry for myself and a bit of a fraud.  This time last year I was told I had incurable cancer.  Thanks to surgery, chemo- and radio-therapy (not thanks at the time as you all know) I have now been told that I am clear (fingers and everything else crossed as I don't want to tempt fate).  So in that respect I feel a bit of a fraud if I post on this forum - but - I still feel so fatigued (feeling sorry for myself).  Some days I can do almost as much as I did before all this but then I spend the next 2 or 3 days flaked out in the chair just about being able to do a sandwich for myself.  I've told the doctors who have said I'm anaemic and put me on liquid iron (which upset my stomach) so I am now on tablets.  One even asked if I'd had a transfusion!  And on top of all that, I seem to have lost a lot of muscle tone.  Has/is anyone else gone/going through this?

But on a lighter note, my hair is getting longer, I think, as I can't tell as the top and sides are growing straight up and out.  I now look like a cross between Harpo Marx and a stick of candy floss.  Someone suggested that I get it straightened (I suggested that they shut up) but I'm not going to do that as it still seems quite fragile and I want to keep all that I've now got!

I hope things are as well as they can be with you JB and, once again, thank you.

Look after yourself..

Carol xx

Hey thats AWESOME news!!! Sooooooooooooo happy for you.  I know you struggled through it, and understand you still have side effects.  My hands and feet do too, but other than that I too so far have kept getting the "all clear" after my bloods and CT scans, next CT scan is 18th August.

You definitely not and shouldn't feel like a fraud!!! I don't come here often but like to pop in now and then to check everybody is okay and sometimes say hello to newbies :)

Other than that wow we into August - yay or nay??? Can't make up my mind, still waiting for my ship to come in hahaha although I have been so busy it could quite easily have sailed past a few times and I didn't notice! 

I had two weeks in Portugal, Algarve - beautiful and really needed it! Loved it so much and somehow for a split second thought I was rockerfella instead of the other fella and without hesitation went and booked a 14night holiday in CUBA!!! :)  next year May so have some waiting to do, but I don't mind its given me something to look forward too.

Great hearing from you, and I am really happy to hear your news!! Hopefully in time you will rid all the side affects, I too am waiting for that day! :)

Take care

JB xx

Hello JB.  Thanks for replying, especially with your good news.  I am really happy for you.  I have to go back to the hospital for my 3-monthly check in September.

Talking about your ship coming in, I'm going to show off now as I can't often do that.  I've just recently came back from a fortnight's cruise in the Med.  I sailed from Southampton so passed Portugal and If I'd known, I would've given you a wave (doesn't matter that you may not have been there at that time, it's the thought that counts).  Like you, it also went to my head - we certainly deserve some comfort after all we've been through, don't we? - and I've booked another cruise to the Caribbean over the New Year (Zika permitting).  We're both going quite exotic, aren't we, you with Cuba and me with the Caribbean.  Perhaps we should charge people to talk to us now (must get the money to pay for these holidays from somewhere!).  As you say, it is a bit of a wait but something to look forward to.

I really am so happy for you and, as you say, hopefully, in time, all these side-effects will be a thing of the past.  Wouldn't it be wonderful if they were a thing of the past by our holidays (or even sooner)?

Do look after yourself

Love Carol xx

Hello JB.  Thanks for replying, especially with your good news.  I am really happy for you.  I have to go back to the hospital for my 3-monthly check in September.

Talking about your ship coming in, I'm going to show off now as I can't often do that.  I've just recently came back from a fortnight's cruise in the Med.  I sailed from Southampton so passed Portugal and If I'd known, I would've given you a wave (doesn't matter that you may not have been there at that time, it's the thought that counts).  Like you, it also went to my head - we certainly deserve some comfort after all we've been through, don't we? - and I've booked another cruise to the Caribbean over the New Year (Zika permitting).  We're both going quite exotic, aren't we, you with Cuba and me with the Caribbean.  Perhaps we should charge people to talk to us now (must get the money to pay for these holidays from somewhere!).  As you say, it is a bit of a wait but something to look forward to.

I really am so happy for you and, as you say, hopefully, in time, all these side-effects will be a thing of the past.  Wouldn't it be wonderful if they were a thing of the past by our holidays (or even sooner)?

Do look after yourself

Love Carol xx

Whoohoo!!! Check you out!!! 

Thats so wonderful to hear and yes we now have the travel bug I fear hehehe  thoughts of waving always count and I expect one from the Caribbean too, promise I'll do the same to you from Cuba!!

we definitely deserve something and this sure s a great start, just need t win the lotto then I'll message you on where to meet so we can travel forever!!

Did you find the sun helped any aches ..... I definitely did! As soon as I landed back here within a couple of days my feet and hands hurt.  I wish this would go away, it's the last of the horrible reminder I have left.  Yeah three monthly for me too, waiting for it to change to six monthly then yearly then fingers crossed nothing!!! 

Thanks for your news I'm so happy for you too.  I wish there was a cure for everyone xx

Be in touch soon, take care of you

JB x

Hi babe

Great news about your results.  I was anemic several years ago and put on tablets (nothing to do with cancer) it really makes you tired so with this on top of recovering from treatment you will feel worn out somedays.  I was told that it takes a year for the chemo to get out of your system so to expect to have days when I would still be tired.  Still get a few problems with aching joints but it gets less an less.  Still have to be a bit careful what I eat as radiotherapy to my pelvic area has affected my innerds but again this is improving

When my hair grew back I did not want to have it cut (have always worn it short) so my first haircut was quite traumatic, its come back thick and curly like it was when I was younger shame its got grey in though.

River

Hello JB. Oh, wouldn't that be wonderful to travel forever or at least until Tuesday. The sun didn't help with my aches, I'm sorry to say but it did give me freckles (at my age) so with my curly hair as well I looked like "Annie" gone wrong. But I did go to Camp Nou (football stadium in Barcelona) where there were 75 steps to navigate and I did it! I was so pleased and wanted to tell everyone that I'd walked up all those stairs (not all at once) but of course they were already up there and wouldn't have been at all interested. But I couldn't stop walking around with a big grin on my face; they must have thought I was barmy.

I'm sorry about your poor hands and feet. I went to my GP as my hands were achy and he suggested that I buy (what happened to free prescriptions for over 60s) a heat rub which I did but I don't find it much use. I suppose it's one of those things that WILL go when it's ready. I still have to be careful of what I eat as through the pelvic radiotherapy, my "insides are shot to pieces" as one of the medics at the hospital told me. Funnily enough, I didn't mind her putting it like that. It let me know I'm not the only one with it and given time it will (hopefully) ease up. On holiday I couldn't make up my mind between two desserts (I can't remember what they were but if I find something that I can eat without it playing me iup afterwards, it's a nice surprise) so I asked the waiter for his advice as to which one he thought was the best one to have and his advice? "Have them both" he said and he brought me both! I must have looked like Humpty Dumpty walking out of the dining room; I certainly felt like him. To try to lose some of the weight that I gained I used to walk past the gym every so often . . .

Do take care and don't overdo it. Until next time

Love Carol xx

Hello River.  Thanks for your message.  Hope you're as well as you can be.

Thanks so much for your news and advice.  I did wonder how long the chemo stays with us until it's "all gone".  This is going to sound awful but I don't mean it the way it sounds but when I read that your radiotherapy to your pelvic area affected your insides, I was so relieved (see what I mean about it sounding awful?).  Although the hospital told me, she was someone who hadn't been through it, but sadly, you have and as you say it's improving, then there is light at the end of the very long and winding tunnel.  I am back on coffee (always used to drink it) as tea now makes me feel queasy (as it used to).  After my surgery last June, I couldn't drink coffee and had to have tea, something that I hadn't done for years.  But a couple of weeks ago I started feeling queasy after a cuppa and have now gone back onto coffee.  It's taken over a year, but I am gradually getting my taste back.  I don't know why my taste changed; just one of those things I suppose.

I see you're a curly top too.  Ideally, our hair would have grown back as it used to be but I'm just so pleased that I at least have hair now, as I'm sure you are.

It's nice to hear from you River and do take care.

Best wishes.

Carol x