Hello again

Hello everyone on this dark, cold, wet and windy 14 November.  It's my birthday today and after 3 weeks of radiotherapy, all I want to do is spend it in bed!  I have 2 more weeks (plus 1 day as I missed a session) to go and am counting the hours as well as the days.  I feel more queasy now than I did with chemotherapy and so achy, shaky and, yes, a bit flaky at times.  I mentioned this, and asked some other questions, to the doctor this week who replied that she didn't know, hadn't heard of that before or just shrugged.  The good ol' shrug, eh?  Says a thousand words without opening your mouth.  So I came away none the wiser but I did manage to get a blood test out of them (lucky me).  So instead of celebrating my birthday with big fat cakes, I am going to have a cheese sandwich as I can't face goodies at the moment.  Does/has anyone else have/had this side effect with radiotherapy?  But I have decided that they won't beat me if I can help it at all.  So if it's good enough for the queen then it's good enough for me and I have decided to have 2 birthdays this year.  The one today and an official one in a few weeks time when I can, hopefully, make up for today.  You are all invited of course and I want you to wear your best dresses, best perfumes, full make-up and highest heels possible.  And the ladies can dress up as well if you want.  This thing does get us down and sometimes the treatment is worse than the disease and that is why I am so grateful to you all for making me feel part of a community who knows exactly what I'm going through, and cares.  Thank you all so very much.  My very best wishes to you all. 

Battlling Babe 

  • Hello JB.  Thanks for replying, especially with your good news.  I am really happy for you.  I have to go back to the hospital for my 3-monthly check in September.

    Talking about your ship coming in, I'm going to show off now as I can't often do that.  I've just recently came back from a fortnight's cruise in the Med.  I sailed from Southampton so passed Portugal and If I'd known, I would've given you a wave (doesn't matter that you may not have been there at that time, it's the thought that counts).  Like you, it also went to my head - we certainly deserve some comfort after all we've been through, don't we? - and I've booked another cruise to the Caribbean over the New Year (Zika permitting).  We're both going quite exotic, aren't we, you with Cuba and me with the Caribbean.  Perhaps we should charge people to talk to us now (must get the money to pay for these holidays from somewhere!).  As you say, it is a bit of a wait but something to look forward to.

    I really am so happy for you and, as you say, hopefully, in time, all these side-effects will be a thing of the past.  Wouldn't it be wonderful if they were a thing of the past by our holidays (or even sooner)?

    Do look after yourself

    Love Carol xx

  • Whoohoo!!! Check you out!!! 

    Thats so wonderful to hear and yes we now have the travel bug I fear hehehe  thoughts of waving always count and I expect one from the Caribbean too, promise I'll do the same to you from Cuba!!

    we definitely deserve something and this sure s a great start, just need t win the lotto then I'll message you on where to meet so we can travel forever!!

    Did you find the sun helped any aches ..... I definitely did! As soon as I landed back here within a couple of days my feet and hands hurt.  I wish this would go away, it's the last of the horrible reminder I have left.  Yeah three monthly for me too, waiting for it to change to six monthly then yearly then fingers crossed nothing!!! 

    Thanks for your news I'm so happy for you too.  I wish there was a cure for everyone xx

     

    Be in touch soon, take care of you

    JB x

  • Hi babe

    Great news about your results.  I was anemic several years ago and put on tablets (nothing to do with cancer) it really makes you tired so with this on top of recovering from treatment you will feel worn out somedays.  I was told that it takes a year for the chemo to get out of your system so to expect to have days when I would still be tired.  Still get a few problems with aching joints but it gets less an less.  Still have to be a bit careful what I eat as radiotherapy to my pelvic area has affected my innerds but again this is improving

    When my hair grew back I did not want to have it cut (have always worn it short) so my first haircut was quite traumatic, its come back thick and curly like it was when I was younger shame its got grey in though.

    River

  • Hello JB. Oh, wouldn't that be wonderful to travel forever or at least until Tuesday. The sun didn't help with my aches, I'm sorry to say but it did give me freckles (at my age) so with my curly hair as well I looked like "Annie" gone wrong. But I did go to Camp Nou (football stadium in Barcelona) where there were 75 steps to navigate and I did it! I was so pleased and wanted to tell everyone that I'd walked up all those stairs (not all at once) but of course they were already up there and wouldn't have been at all interested. But I couldn't stop walking around with a big grin on my face; they must have thought I was barmy.

    I'm sorry about your poor hands and feet. I went to my GP as my hands were achy and he suggested that I buy (what happened to free prescriptions for over 60s) a heat rub which I did but I don't find it much use. I suppose it's one of those things that WILL go when it's ready. I still have to be careful of what I eat as through the pelvic radiotherapy, my "insides are shot to pieces" as one of the medics at the hospital told me. Funnily enough, I didn't mind her putting it like that. It let me know I'm not the only one with it and given time it will (hopefully) ease up. On holiday I couldn't make up my mind between two desserts (I can't remember what they were but if I find something that I can eat without it playing me iup afterwards, it's a nice surprise) so I asked the waiter for his advice as to which one he thought was the best one to have and his advice? "Have them both" he said and he brought me both! I must have looked like Humpty Dumpty walking out of the dining room; I certainly felt like him. To try to lose some of the weight that I gained I used to walk past the gym every so often . . .

    Do take care and don't overdo it. Until next time

    Love Carol xx

  • Hello River.  Thanks for your message.  Hope you're as well as you can be.

    Thanks so much for your news and advice.  I did wonder how long the chemo stays with us until it's "all gone".  This is going to sound awful but I don't mean it the way it sounds but when I read that your radiotherapy to your pelvic area affected your insides, I was so relieved (see what I mean about it sounding awful?).  Although the hospital told me, she was someone who hadn't been through it, but sadly, you have and as you say it's improving, then there is light at the end of the very long and winding tunnel.  I am back on coffee (always used to drink it) as tea now makes me feel queasy (as it used to).  After my surgery last June, I couldn't drink coffee and had to have tea, something that I hadn't done for years.  But a couple of weeks ago I started feeling queasy after a cuppa and have now gone back onto coffee.  It's taken over a year, but I am gradually getting my taste back.  I don't know why my taste changed; just one of those things I suppose.

    I see you're a curly top too.  Ideally, our hair would have grown back as it used to be but I'm just so pleased that I at least have hair now, as I'm sure you are.

    It's nice to hear from you River and do take care.

    Best wishes.

    Carol x