Hello JB and thanks so much for replying so soon. I'm SO glad to read that your first scan gave you the great news of being clear.  It must have been so emotional for you after all you'd been through.  At times like that it is certainly worth the months of treatment and after-effects.  But I'm sorry you're still having difficulties with pain and trying to keep positive but, as you say, we are getting there slowly but surely and at least we are still here to complain!  I put some washing out this morning and even the tops of my arms as well as my wrists are aching now where I reached up to peg it.  I suppose the only answer is not to do washing (therefore no ironing; what a good idea) unless absolutely necessary.

Yes,do keep your ears on alert for "the yell" and we'll be off!

Do take care and thank you for your kind words.

Love BB xx 

I think it's normal I had radio and after the 3rd week I felt really sick and so so tired but after the course finished you do get better slowly , my radio finished 2 yrs this june , I am still not back to me but that's mainly because it was throat cancer and I can't eat solid food so lack a lot of energy , developing FM hasn't helped , I am trying not to let it get me down but it's really hard some days :( 

hope this helps 

josie

Hello Josie and thank you for your reply.

I'm sorry you're still suffering after all this time.  It certainly is a very long journey we're going through, isn't it?  Like you I have bad days where I just ache all over and dose up on painkillers which knock me out but at least I don't feel the pain for a while.  On a lighter note, I was feeling sorry for myself, as I have to go to see my oncologist tomorrow, when the phone rang.  I answered it and it was the usual "cold call", this time asking me if I'd had an accident recently.  I replied that I hadn't, but they would if they phoned me again"  Of course with the way I feel at the moment, I couldn't intimidate anyone but they weren't to know that.

Do take care Josie and, once again, thank you for replying.

BB xx

Hi BB

yes it is a long journey but today the sun was shining , even did a bit of gardening :) and found a new soup that has 500 calories in it so hooefully I will put on a bit of weight with every woman I know trying to lose weight think I'm the only person I know trying to get fatter lol, 

Hope today as been a good day for you sending hugs :) 

Hey BB not heard from you or seen any activity for a while.  I just want you to know I'm thinking of you and hope you ok

JB X

Hi just wondering is radiotherapy worse than chemo then?  I can't even imagine what it's like I think I need both and I have never been so scared in my life xxxx

Hello JB. Thanks so much for your kind words.  I've not posted as I feel a bit sorry for myself and a bit of a fraud.  This time last year I was told I had incurable cancer.  Thanks to surgery, chemo- and radio-therapy (not thanks at the time as you all know) I have now been told that I am clear (fingers and everything else crossed as I don't want to tempt fate).  So in that respect I feel a bit of a fraud if I post on this forum - but - I still feel so fatigued (feeling sorry for myself).  Some days I can do almost as much as I did before all this but then I spend the next 2 or 3 days flaked out in the chair just about being able to do a sandwich for myself.  I've told the doctors who have said I'm anaemic and put me on liquid iron (which upset my stomach) so I am now on tablets.  One even asked if I'd had a transfusion!  And on top of all that, I seem to have lost a lot of muscle tone.  Has/is anyone else gone/going through this?

But on a lighter note, my hair is getting longer, I think, as I can't tell as the top and sides are growing straight up and out.  I now look like a cross between Harpo Marx and a stick of candy floss.  Someone suggested that I get it straightened (I suggested that they shut up) but I'm not going to do that as it still seems quite fragile and I want to keep all that I've now got!

I hope things are as well as they can be with you JB and, once again, thank you.

Look after yourself..

Carol xx

Hello Traceylois

I'm so sorry you're so worried about the possibility of having chemo- and radiotherapy.  Usually the unknown is far worse than reality.  With the chemo, once the cannula was set up and the drugs were being adminstered, I was fine, although I did have a sllight allergic reaction but there are always staff about to help and to chat to.  At the hospital I went to, there were recliner chairs and during treatment, I read, dozed, chatted with others on the ward, dozed, went to the toilet, dozed.  The chemo itself didn't hurt although having the cannula inserted was a bit uncomfortable.  Afterwards, I was given domperidone (anti-sickness) tablets and sent home.  I was absolutely fine and the following day felt just as I normally did.  But that evening started to feel a bit unwell and for the next couple of days felt like I had 'flu.  But after that I felt back to normal and was even climbing up changing curtains.  Again, the radiotherapy wasn't painful and only lasted about 20 minutes altogether (for me, chemo was an all-day session) but towards the end (it was a 6-week course) I did feel tired.

I'm sorry if I've gone on a bit but I hope that this is helpful to you.

Good luck and do come back to let us know how you're getting on. 

Take care.

Best wishes, Carol xx

Hey thats AWESOME news!!! Sooooooooooooo happy for you.  I know you struggled through it, and understand you still have side effects.  My hands and feet do too, but other than that I too so far have kept getting the "all clear" after my bloods and CT scans, next CT scan is 18th August.

You definitely not and shouldn't feel like a fraud!!! I don't come here often but like to pop in now and then to check everybody is okay and sometimes say hello to newbies :)

Other than that wow we into August - yay or nay??? Can't make up my mind, still waiting for my ship to come in hahaha although I have been so busy it could quite easily have sailed past a few times and I didn't notice! 

I had two weeks in Portugal, Algarve - beautiful and really needed it! Loved it so much and somehow for a split second thought I was rockerfella instead of the other fella and without hesitation went and booked a 14night holiday in CUBA!!! :)  next year May so have some waiting to do, but I don't mind its given me something to look forward too.

Great hearing from you, and I am really happy to hear your news!! Hopefully in time you will rid all the side affects, I too am waiting for that day! :)

Take care

JB xx