hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
So good to hear from you thought you had all forgotten about me lol only joking.
Yesterday was a bad day my mind was all over the place needed time out from everyone started crying from morning to night which is so unlike me, not sure if it is because they have stopped my tamoxifen or everything racing round my head probably both. I was also very sore from the second surgery bruises coming out fast and furious now. I just feel so down and need to try and shake this feeling as I need to focus on what's coming up. Donna like you have said I have beaten it once will do it again although I am finding it harder to stay so positive as I know what is coming maybe an advantage in some ways, I just want to get on with it all now and get back to some sort of normality whatever that is.
Donna how are you now as you said you had the hospital the other day and has all your treatment finished now? What treatment did you have last year sorry to ask but just being nosey really ha ha.
Nina how are you and how was Christmas with the family as haven't heard from you must of been good:))))
Well thanks for listening to me really appreciate the support as find it hard sometimes explaining how I feel to family as don't want to burden them with my woes and honestly I don't think they really understand as much as they try, not their fault I know
Littlesis I hate the thought of all you are going thru! I only know you from cyber space but I know you CAN do this!
What is hAppening to you is what we all dread so you need to know we will be here to support you whenever you need us !
We all live in different places (i live on south coast) so we all have slightly different "medical" experiences but we all have the same emotions!
Do u use face book? A few of us keep in touch with that!
Thank you we had a lovely christmas if the last couple years have taught us anything its live for today ! Both our mums are unwell and my daughters were 18 and 21 ! I am also 50 next thurday! So we decided to go mad and holiday over xmas and new year in the sun in barbados! Very extragavant but quality family time I will never forget!
Please please message ,rant ,shout , blub to us anytime !
Hi linda , how are you after your op? I feel for you babes and I know you're feeling rubbish but you know you can do this, we worry all the time that this awful disease is going to come back and I know you must feel like why me, you've done nothing wrong Honey, just fecking bad luck. You're strong and you will fight this the way you done four years ago. Its weird cause I haven't got rid of my wig cause in dont want to tempt fate, we know the taxotere makes your bones and muscles sore but at least you're prepared for that and get strong pain killers, any time you want to talk, just come on here and shout at us!, stamp your feet and cry cause you don't deserve this, but you will fight it!
Sorry Donna I didn't realize you had went through cancer again last year, hope youre keeping well?
Sorry I've not been around for a while but i've had loads going on, and it's not all good i'm afraid.
I got flu at the begining of 2013 and couldn't shake it off, the pains in my chest got worse because i had a chest infection too, so i went to my doctors, got my antibiotics and just carried on (as we women do) a week later i went to hospital for a routine appointment at the jasmin center, my consultant said i was running a high temperature so he wanted to admit me.... so back into hospital I went.... after 4 days of intravenous antibiotics the consultant admitted defeat and said that the left implant was rejecting AGAIN... and he removed it.
The flu left me with a sore throat, then i lost my voice... i just thought i had laryngitus so i kept warm and took throat lozengers, after 3 weeks and still no voice, i went back to the doctor, another week of antibiotics and she eventually refered me to the hospital.... the doctor there, sprayed lidocane up my nose and shoved a camera up my nose and down the back of my throat (bloody nasty) it turns out i have a fluid filled cyst on my voice box and acid burns on my vocal chords (caused by throwing up) so i have been back a couple of times as he keeps and eye on it, apparently, if it calcifies, then I will need a biopsy....I am back again next friday.
I had another implant put in my left breast, a different type, this one has a metal stud in the front and a steel plate on the back, they locate the metal stud with a magnet, marks a small cross in my skin, the consultant then injects the saline directly through to the implant, the steel plate stops the needle from going through to my lungs... but this one cuts out the problem of having a seperate filler port..... the consultant filled the new implant up very slowly over four months.... and this one didn't reject.. WOO HOO.... I am going back on the 11th of february to get a date to remove the expandable implant and put a regular implant in... i will keep you updated.
I am also waiting on the results of an ultrasound on my ovaries womb cervix, bladder and kidneys (ultrasound was yesterday)
So that is pretty much all the bad news at the moment.
On to a lighter note..... I finally got my holiday... One week in Portugal, all inclusive, it was great.... i managed to get bronchitus while i was over there, but that didn't stop me, i was still out everynight with the girls, and wore strapless dresses agin for the first time in 3 years, I had a whale of a time...... BUT i did have to carry a letter from my consultant explaining that i would probably set the alarms off in the security area of the airport due to the steel in my breast implant.... lol.
I am so sorry to hear that some of you have been going through such a hard time.. but i have done with feeling sorry for myself and i will be here from now on as much as i can.
Linda, I was just lucky because i had to have an MRI scan to determine how big the lobular cancer in my right breast was.... and it was the MRI that discovered "something" in my left breast, a quick ultrasound and a biopsy said it was invasive ductal carcenoma in my left breast, .... but if it wasn't for the MRI, it would have taken another 6 months to a year before the second cancer would have been found.
It's not good, I understand that, but you will get throught it because you are not ready to leave your family yet... it's scarey cos you know what is coming..... but cancer treatment is a bit like pregnancy, no two are the same... things your body struggled to deal with first time round, might be slightly easier this time..... don't write yourself off yet, you might just surprise yourself this time.
Hope you are all well sorry I haven't been in touch but have been in hospital again and had a bad few days. I had to go in to have a port put into my chest as unable to have injections in both my arms now, well I have a date for the start of my chemo which is Wednesday 5th Feb and I will be having 6 lots every 3 weeks of the following mix cyclophoiphamide and taxpayers instead of once a week for 18 weeks, my oncologist came to the conclusion that the original treatment he intended was not enough as it now transpires it is a triple negative cancer then after I will have 3 weeks 3 days of Radiotherapy. I am due to go for a bone scan next week also, I have been busy haven't Iol. I am having to go for a genetic test also as my oncologist is concerned that it could be hereditary fingers crossed it isn't as I would not wish this on anyone will let you know how that goes.
I have been getting myself prepared for my treatment been and had my hair cut short, looked on the web for some turban hats etc the only web page I can find is in America, do you know of any in this country? I am also going out this weekend with some friends to cheer myself up what we are doing I am unsure of as they want to surprise me, I am so lucky to have a good group of friends around me and my family have. been fantastic.
Well ladies I will speak to you soon as will be on the steroids from Tuesday what joy not. Can you give me your Facebook details so I can find you on there also. Well take care
Sorry to hear you've been poorly. As if things aren't bad enough. I'm pleased you have your date through for treatment though I know you are dreading it, it's needed. Can't you get head wear from your local hospice? That's where I got mine from. I hope you have a lovely time at the weekend. So glad you have good friends n your families support. Look me up, Leonie Watering. I'm always on fb!
Re head gear I got a load of different scarfs mainly from charity shops! I also have very kind friends who got me a couple of lovely ones from beau beau they were lovely ! If I still had them I would lend them to you but I have already lent them out ! I found this address not sure any good but I had quick look and it looks ok.
A few of us are on face book can add me nina diplock. While away some hours!
Good luck we everything we r all just a click away xx
Hi everyone. Linda - I also start chemo on 5th Feb, same deal...6 cycles in all, 3 weeks apart. I also have an MRI due this Sat regarding the skeletal structure because of bone mets, only 3 days after chemo so hope I won't be too rough for that. Mine is also triple neg invasive ductal primary although originally the biopses of the neck mets threw up a weak ER+ so I was on course to have hormone-related treatment after chemo, but I suspect now that will change. I will be having a port implanted before the next chemo session which should help to reduce problems with veins etc.
Anyway, hopefully this will give the C a good kicking - that is the bit that is uncertain, but as I have my sights set on Race for Life in the summer (with my sister who has also had BC) the message cannot be clearer. Good luck to you on Weds.
