I'm still here! So many years after my metastatic diagnosis.

Just catching up - it's been a while.

Hello everyone, and hoping for the very best of health and happiness for you in 2025.

And wishing you all the very best for 2026!

Thank you to the friends I've met on here, and hoping to encourage anyone living with metastatic cancer, people like myself with difficult diagnoses. I'm still living with my Stage 4 cancer. But still looking after my grandchildren. Still enjoying life. Yes, I get tired, but wow what a wonderful life it is!

Xxxxx

Hoping for your best outcome

Xxxx

Parents Reply Children
  • Hi Lee,

    I am not sure there is a "secret" as everyone is so different and our cancers are unique to each of us I think - the nurses will know more about that.

    But I believe there are many things we might be able to do to help ourselves stay as healthy as possible in order to receive appropriate medical treatment.

    I am always happy to chat about the things that I feel have helped support me on my journey so far.

    I do not share my web site publicly but you're welcome to contact me as a "friend" on here. People tend to look at my stuff and pick bits from it that suit them. I also point to the books that have helped encourage me towards hope and focus whilst living with my cancer.

    As far as I am aware, treatments are improving all the time so I like to try to stay hopeful wherever I can, but that's sometimes fairly tricky!

    Looking forward to chatting to you, and wishing you all the best

    mare

    X

  • Hello Lee

    I think mare's secret is likely to be her zest for life. How is life treating you anyway? I summoned up the energy to go out last night to enjoy live music and a few drinks with friends. Although Im pooped today its done me a lot of good. Thanks for the many tips youve passed on to me.I got a new pillow for side sleepers and it has made a good improvementt in sleep quality. I think because my spine is better aligned causing less numbness and pins and needles in my arm and less pain in my ribs. Wishing you a nice day ahead.

    Ed

  • Im in your boat to, two and a half years post diagnosis,  stage 4 breast cancer wiith secondary bone cancer, in most of my spine, skull and pelvic  bones.  On triple therapy, and doing fine.  My only severe issue is my hip bone (top of femur/thigh bone is crumbling, and  repaiing that (hip replacement) is something I dont think Im up to. Its depressing that Im coping and doing pretty well with the cancer treatment, but the impact of the drugs has made my bones so weak a really painful hip can't  be fixed.

  • Offline in reply to mare

    Hi Mare, I have stage 4 breast cancer with secondary bone cancer.  Id be interested in seeing your website if you're  happy to share your deets with me?

  • Offline in reply to Manda-

    Hi Manda, I've send a friend request.

  • Hi Mare I have sent you a friend request.  Any tips would be greatly received.  Hi Ed glad the pillow helped , it has helped me too no longer have pain in my collarbones.  Good that you went out with friends it is a great pick me up.  I am going for a meal Tuesday night and lunch on Wednesday with my old work friends.  Manda what is triple therapy?  I am on Ribociclib, Exemastane and denosumab.  Sorry to hear about your hip bone.  Nice to hear from you Jolamine.  Hope everyone has a good day.

    Lee x

  • Hi Lee, I sent you one too. But it it's not working! I'll check again later and see if it has.

  • Offline in reply to mare

    hey could you send one to me please as wont let me open the friendship request. I also have secondary breast cancer with extensive bone mets and would love to read what you have found helpful.. thanks very much and best to you and your family for Christmas and holidays etc 

  • Offline in reply to Ch2

    Have sent friend request. Wishing you and your family all the best too x

  • Offline in reply to mare

    Hi Mare,

    I couldn't  access the  link you sent me 

    either, I assumed it was my analogue nature getting in the way of technology working.  So I'll  keep trying. Thank you. 

    Season greetings!

    Manda