Cancer Research UK main site
Cancer Chat | Cancer Research UK
Cancer Chat | Cancer Research UK
  • Join
  • Sign in
  • Search forum
  • Join
  • Sign in
  • Home
  • Categories
  • Forum Help
  • More
  • Cancel
leelaloo

leelaloo

  • Profile
  • Activity
  • Friends
  • Mentions
  • More
  • Cancel
  • More
  • Cancel

About leelaloo

Hi my name is Lee.  I am originally from Liverpool but moved to South Africa when I was one but I have now lived in UK for 26 years now.  I found out in 2012 that I had stage 3 lobular breast cancer.  I had lumpectomy, then chemo and then radiotherapy, tamoxifen/letrazole.  In 2024 I went to the doctor with back and hip pain.  She sent me for an Xray.  I read on the NHS app that they found two sclerotic bone lesions in my pelvis which were likely benign.  I never heard back from the doctor. After a few weeks I phoned up and asked about the bone lesions and the doctor told me that they were 99.9 percent it was nothing to worry about.  He sent me for physiotherapy.  After the first physio session she referred me for a MRI.  This came back showing multiple metastates in pelvis and spine and ribs and skull.  So I have been diagnosed with metastatic lobular breast cancer which is treatable not cureable.  I am on Ribociclib, Exemastane and Denosumab.  

Speak to a nurse

  • Nurse Helpline
    0808 800 4040
  • Questions about cancer? Call freephone
    9 to 5 Monday to Friday or email us

Quick links

  • Find local shops
  • Shop online
  • Contact us
  • Jobs

Follow us

  • Like Cancer Research UK on Facebook
  • Follow Cancer Research UK on Twitter
  • Follow Cancer Research UK on Instagram
  • Connect with Cancer Research UK on LinkedIn
  • Subscribe to Cancer Research UK on YouTube
  • About our information
  • Terms and conditions
  • Privacy
  • Modern Slavery Statement
  • Cookies
  • Accessibility
  • Sitemap
Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.