Has anyone else had a optic nerve sheath tumour?

hi I was diagnosed with an optic nerve sheath tumour behind my left eye and it's taken me sight in the eye away I'm having to use a tripod walking stick for my balance was wondering if anyone else is having same issues as haven't got much help 

Parents
  • Hi, I received 28 sessions of radiotherapy earlier this year to control my optic nerve sheath meningioma as it had grown intracranially between my scans in Oct 2020 & March 2021. I had a follow up scan in August and the tumour is stable so not due to be scanned again until Feb. I have no vision at all in my right eye but thankfully no balance problems

Reply
  • Hi, I received 28 sessions of radiotherapy earlier this year to control my optic nerve sheath meningioma as it had grown intracranially between my scans in Oct 2020 & March 2021. I had a follow up scan in August and the tumour is stable so not due to be scanned again until Feb. I have no vision at all in my right eye but thankfully no balance problems

Children
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