Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Mich,

    I am so impressed that both you and Davia have been out without covering your heads. I wish I was brave enough. I still can't stand seeing myself in the mirror.

    I also preferred the early chemo appointments although I never seemed to get home till evening.

    I have an ultrasound and mamagrem tomorrow, I'm not looking forward to it as I'm terrified the tumor hasn't shrunk. Oh well, it's out of my hands so I'll handle whatever comes my way.

    I'm glad you woke up this morning with no pain, long may it continue

    Lots of love as always,

    Sue xx

  • Hi Mich

    Hope you enjoyed your walk, it is good to keep upbeat like you say but sometimes i cant see the wood for the trees then i remember this isnt going to last forever *phew*

    I am enjoying being able to walk my dogs again, i try and walk everyday even when i'm feeling fatigued as it does make me feel better, though the weather is making me not want to go out. 

    Like you and Davia I have braved the outside without my wig / hat. I was so worried about having my wig in time but now i have it i find its making my head too hot so i have given up with it. I have bought a nice reversable cap which doesnt make my head too hot from a good ebay seller, i think she makes them so i am planning to wear that to work next week.

    Sending hugs to you all.

    Linda x

  • Hey ladies,

    Sorry to hear you feeling rough Davia, good you went out for a walk.  I haven't been walking much either with this yuckie weather.  Was going to head out today but now i have cystitis so rather painful.  I did manage to go to a meditation session tonight which i really enjoyed.  It was the sound bath meditation.  Now to listen to the videos.  the steroids are making me buss though! Glad to hear you have prov date for your opp.

    Funny you should say that Sue, i freak myself out every time i wake up and look in the mirror!  I look like my dad! He passed away 10 years ago, but having no hair or eybrows makes me realise how much i resemble him! I've always been self conscious, being taller than the average woman at 5"10 i've always just wanted to blend in.  But now i've actually got the courage not to give a damn.  Well this week at least, ask me again next week lol! 

    Before i forget, good luck for tomorrow, thinking of you :)

    Well done Linda in your walks, i do enjoy mine,  Hopefully cysitis will all be gone tomorrow and I'll take doggies for a walk. I wore my wig for a couple of hours today to show my friend and in the end i was like wanna see my bald head instead!  I had red marks all over my head and forehead lol!  Hmm might have to see if i can adjust the straps!  So yeah I'll be wearing a lot more scarves.

    Ah all the best for work next week.  Is this the first time back after treatment or have you been working.  Sorry cant remember.

     

    Hugs xx

     

     

  • I've been back one day on nye, i'm only working 4 hour shifts mon - thurs as its chemo day friday, I want to try and work on my good week and that way my full pay sickness will stretch that little bit further as i'll be on half pay end Feb. Cancer really is the pits isnt it, not noly doesit hit us health / emotional wise but also hits us financially.

    I deffo prefer being bald around the house I just have to remember to put a cap on if the door goes lol.

    Lx

  • Good for you Linda I thought I would work but the chemo brain took over. I struggled on EC but don't seem too bad in the weekly. I hope to do a few hours a week too after chemo and waiting for opp. Work have been great and very flexible so fortunate. 

    Ha ha funny you should say that, the day after I shaved my head the builder from next door, rang the door bell. I had just got dressed wearing leggings and vest top, no hair, no eyebrows, no make up and answered the door! Must of got the shock of his life as he had seen me around looking 'normal' ha ha! Well I did when caught a glimpse of myself in the mirror! 

    The sun is out today so now after the doctor I'm having hot chocolate at the harbour testing driving my bolero hat. 

    Hope you having a good one xx

    Happy Friday ladies! Thinking of you Sue

  • Hi Ladies,

    Thanks Mich. I had my ultrasound and mamagram this morning and the tumor has hardly shrunk, not even by a centimeter. I feel totally gutted as I might need a masectomy instead of a lumpectomy.

    I actually opened the door to the postman without any head covering. He didn't seem to notice, just passed me the post and went. 

    I hope everyone is doing well. Have a great weekend Ladies

    love Sue xxx

  • Oh Sue that's rubbish, I'm sorry. Did you have carboplatin as part of your chemo?

    Claire x

  • Hey Sue, 

    Ah sorry to hear it's not the result you wanted boo. Think it will be like mine still there after the treatment so mascetomy on the cards. Although personally I'm feeling I would prefer mascetomy as I feel it would reduce the risk of more lumps, I know it can't totally but just how I feel about it now. 

    Try not to worry too much about it, this is just the first stage of our treatment run, as you lovely ladies have reminded me, one step at a time

    Ha ha well done in opening to the postman. Ours has mostly seen me in my dressing gown, esp over Xmas! 

    Do you have anything fun planned for the weekend? 

    Xx

  • Hi ladies,

    Claire, I only had EC And Taxol. I don't know if that makes any difference to the tumor not shrinking. How far along your treatment plan are you?

    Mich, haha it took me a lot of courage to open the door head naked. I think we all have our wobbles and this one setback won't win.

    I'm off to Sudbury in Suffolk today to see my best friend, we've been friends since we were 4 years old. It takes about 1 1/4 hours to get there from where I am in Essex. 

    I hope you all have a wonderful weekend

    Love to you all,

    Sue xx

  • Hi Sue, really sorry to hear the tumor hasn't shrunk, but they will do what's best for you x have aovely day visiting your best friend, hope the sun is shining there like it is here xx

    I went in for my line flush and bloods yesterday only for them to ring to say the lab has lost my sample so I have to go in at 9am Monday and wait for results before they make up the chemo,  think we'll be in the cafe lol 

    I'm going to venture out today, I ended up in bed yesterday feeling fatigued, all I did was walk half a mile from unit to car park and I was pooped, but I keep saying, last one of combo woop. I have noticed my hair is shedding, I don't know if it's natural she'd or its started coming out again, I keep eye on it.

    Hope you ladies enjoy the weekend and some lovely sunshine, keep well xxxx