Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi Mich, glad your feeling better today, and well done for being brave and going out without wig or scarf, it feels weird at first doesn't it, but I was like you, hot bothered and just pulled my hat off lol

I am feeling gross today, like you say, it doesn't just effect your body, I get so low on these days after the combo, my mind goes into overdrive its horrid, just got in from having a short walk, nothing to strenuous but blows cobs off lol 

I have two more paxo after this, and got letter yesterday with rough date for surgery, 21st Feb. I finish chemo on 27th Jan so will have a little break beforehand, but scared as never had an opp before I am having full clearence of lymphs, I should see surgeon before hopefully but not got an app for that yet. X

Claire I listened to the meditation videos last night they were good, thanks for the tip, hope your feeling better x

Well I'm hoping my calm brain will be back soon, lol 

Sending you all virtual hugs, keep well ladies xxx

Hi Mich,

I am so impressed that both you and Davia have been out without covering your heads. I wish I was brave enough. I still can't stand seeing myself in the mirror.

I also preferred the early chemo appointments although I never seemed to get home till evening.

I have an ultrasound and mamagrem tomorrow, I'm not looking forward to it as I'm terrified the tumor hasn't shrunk. Oh well, it's out of my hands so I'll handle whatever comes my way.

I'm glad you woke up this morning with no pain, long may it continue

Lots of love as always,

Sue xx

Hey ladies,

Sorry to hear you feeling rough Davia, good you went out for a walk.  I haven't been walking much either with this yuckie weather.  Was going to head out today but now i have cystitis so rather painful.  I did manage to go to a meditation session tonight which i really enjoyed.  It was the sound bath meditation.  Now to listen to the videos.  the steroids are making me buss though! Glad to hear you have prov date for your opp.

Funny you should say that Sue, i freak myself out every time i wake up and look in the mirror!  I look like my dad! He passed away 10 years ago, but having no hair or eybrows makes me realise how much i resemble him! I've always been self conscious, being taller than the average woman at 5"10 i've always just wanted to blend in.  But now i've actually got the courage not to give a damn.  Well this week at least, ask me again next week lol! 

Before i forget, good luck for tomorrow, thinking of you :)

Well done Linda in your walks, i do enjoy mine,  Hopefully cysitis will all be gone tomorrow and I'll take doggies for a walk. I wore my wig for a couple of hours today to show my friend and in the end i was like wanna see my bald head instead!  I had red marks all over my head and forehead lol!  Hmm might have to see if i can adjust the straps!  So yeah I'll be wearing a lot more scarves.

Ah all the best for work next week.  Is this the first time back after treatment or have you been working.  Sorry cant remember.

Hugs xx

I've been back one day on nye, i'm only working 4 hour shifts mon - thurs as its chemo day friday, I want to try and work on my good week and that way my full pay sickness will stretch that little bit further as i'll be on half pay end Feb. Cancer really is the pits isnt it, not noly doesit hit us health / emotional wise but also hits us financially.

I deffo prefer being bald around the house I just have to remember to put a cap on if the door goes lol.

Lx

Good for you Linda I thought I would work but the chemo brain took over. I struggled on EC but don't seem too bad in the weekly. I hope to do a few hours a week too after chemo and waiting for opp. Work have been great and very flexible so fortunate. 

Ha ha funny you should say that, the day after I shaved my head the builder from next door, rang the door bell. I had just got dressed wearing leggings and vest top, no hair, no eyebrows, no make up and answered the door! Must of got the shock of his life as he had seen me around looking 'normal' ha ha! Well I did when caught a glimpse of myself in the mirror! 

The sun is out today so now after the doctor I'm having hot chocolate at the harbour testing driving my bolero hat. 

Hope you having a good one xx

Happy Friday ladies! Thinking of you Sue

Hi Ladies,

Thanks Mich. I had my ultrasound and mamagram this morning and the tumor has hardly shrunk, not even by a centimeter. I feel totally gutted as I might need a masectomy instead of a lumpectomy.

I actually opened the door to the postman without any head covering. He didn't seem to notice, just passed me the post and went. 

I hope everyone is doing well. Have a great weekend Ladies

love Sue xxx

Oh Sue that's rubbish, I'm sorry. Did you have carboplatin as part of your chemo?

Claire x

Hey Sue, 

Ah sorry to hear it's not the result you wanted boo. Think it will be like mine still there after the treatment so mascetomy on the cards. Although personally I'm feeling I would prefer mascetomy as I feel it would reduce the risk of more lumps, I know it can't totally but just how I feel about it now. 

Try not to worry too much about it, this is just the first stage of our treatment run, as you lovely ladies have reminded me, one step at a time

Ha ha well done in opening to the postman. Ours has mostly seen me in my dressing gown, esp over Xmas! 

Do you have anything fun planned for the weekend? 

Xx

Hi ladies,

Claire, I only had EC And Taxol. I don't know if that makes any difference to the tumor not shrinking. How far along your treatment plan are you?

Mich, haha it took me a lot of courage to open the door head naked. I think we all have our wobbles and this one setback won't win.

I'm off to Sudbury in Suffolk today to see my best friend, we've been friends since we were 4 years old. It takes about 1 1/4 hours to get there from where I am in Essex. 

I hope you all have a wonderful weekend

Love to you all,

Sue xx

Hi Sue, really sorry to hear the tumor hasn't shrunk, but they will do what's best for you x have aovely day visiting your best friend, hope the sun is shining there like it is here xx

I went in for my line flush and bloods yesterday only for them to ring to say the lab has lost my sample so I have to go in at 9am Monday and wait for results before they make up the chemo,  think we'll be in the cafe lol 

I'm going to venture out today, I ended up in bed yesterday feeling fatigued, all I did was walk half a mile from unit to car park and I was pooped, but I keep saying, last one of combo woop. I have noticed my hair is shedding, I don't know if it's natural she'd or its started coming out again, I keep eye on it.

Hope you ladies enjoy the weekend and some lovely sunshine, keep well xxxx

Hi Sue, really sorry to hear the tumor hasn't shrunk, but they will do what's best for you x have aovely day visiting your best friend, hope the sun is shining there like it is here xx

I went in for my line flush and bloods yesterday only for them to ring to say the lab has lost my sample so I have to go in at 9am Monday and wait for results before they make up the chemo,  think we'll be in the cafe lol 

I'm going to venture out today, I ended up in bed yesterday feeling fatigued, all I did was walk half a mile from unit to car park and I was pooped, but I keep saying, last one of combo woop. I have noticed my hair is shedding, I don't know if it's natural she'd or its started coming out again, I keep eye on it.

Hope you ladies enjoy the weekend and some lovely sunshine, keep well xxxx