Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

Parents
  • So sorry to hear your diagnosis, sending lots of support to you. I have my appointment at 2.30 today and it's been the longest just over a week of my life, I just don't what to expect, I'm trying to remain positive but read into everything. I thought if it was good news they would just tell me over the phone, as so many of my friends who I have spoken to have.

    The fact that I have an actual appointment booked makes me think it's not going to be good news.

    Not long till I find out now and I will deal with what the outcome is. 
    It's how I tell my 8 and 5 year the the news is what i am worrying about should it not be the best news. 
    xx

  • Ladies, sorry once again for the radio silence.  I'm having a much harder time wih the ec chemo.

     

    Lindylu, how are you getting on with the chemo?  Time does seem to fly, I can't believe mine is over already.

     

    Mich8, I've been doing a bit of yoga and meditation.  Finding it quite helpful.  There;s a lovely meditation video on youtube, look up "meditation for cancer patients and carers", it's an American doctor and it's a really nice guided meditation.  Such a pain about the delay to the BRCA result.

     

    SueBea, totally understand you being worried about the surgery date but surely they will stay within the recommended time limits?  Just a shame you have to suffer additional stress!  Good luck with the mammogram and ultrasound, just a couple of days to go.

     

    Davia, I've never been a fan of NYE.  This year I was in bed by 9.30 :)

     

    Niknik, I'm not sure if I've missed a post from you somewhere.  What is the appointment you had booked?  Hope it went well.

     

    Sorry this message is a bit all over the place ladies, trying to go back and read all the recent messages.  Hope I've mentioned everyone.  

     

    The EC has made me feel so sick and very tired, had my last one on Friday.  Monday I felt the worst I've felt since starting, it was awful.  I've also been much more emotional the last few weeks.  However, felt much better yesterday and today.

     

    Had my ultrasound Monday and the doctor doing it said she could no longer see the tumour which is amazing news.  She could still see something small in the lymph nodes on the mammogram but that will be removed during surgery.  Had the PET scan yesterday, will have to pick up the report in a couple of days and take it to my surgeon next week, surgery 7 Feb.  

     

    Hope everyone is ok, I really will try and get in here a bit more often.

     

    Sending lots of love. x

     

    Roz, nice to hear from you.

     

    Interesting reading all your comments about the pic line.  No-one ever even suggested it to me, I've had all 16 doses straight into the same two veins.  I have to say though that arm is sore now.  I've never had a problem with needles but in the last couple of days I've been injected several times as I've had all my scans again and each time they put the needle in I feel sick.

     

    After reading all your comments about hair loss I had a good look in the mirror the other day (something I've been avoiding) and realised my eyebrows are nearly gone.  Eyelashes are mostly still there but very light.  I haven't had to shave under my arms for a couple of months but checked out all "other areas" that may need waxing and realised no hair there either!

     

    I've also put weight on.  I normally see the same oncologist but she was away the other week and I saw a different guy who said in the normal blunt Chinese way "you've put weight on! never mind, diet when treatment is over". ...

  • Hi Claire.

    Hope your se have eased off now and you're feeling brighter.

    I'm now back to feeling human after last fec and am enjoying each day doing something nice until 24th when i have my 3rd and last fec after that its onto 3 Docetaxel, i'm hoping thats as nice to me as the fec has been.

    Hope the rest of you ladies are doing ok :)

    Linda x

  • Hey Linda,

    Glad to hear you are managing ok after your fec. its good to have things to keep us upbeat and busy.  I'm going to walk my friends dog this afternoon, small things but helps eh.

    xx

Reply Children
  • Hi Mich

    Hope you enjoyed your walk, it is good to keep upbeat like you say but sometimes i cant see the wood for the trees then i remember this isnt going to last forever *phew*

    I am enjoying being able to walk my dogs again, i try and walk everyday even when i'm feeling fatigued as it does make me feel better, though the weather is making me not want to go out. 

    Like you and Davia I have braved the outside without my wig / hat. I was so worried about having my wig in time but now i have it i find its making my head too hot so i have given up with it. I have bought a nice reversable cap which doesnt make my head too hot from a good ebay seller, i think she makes them so i am planning to wear that to work next week.

    Sending hugs to you all.

    Linda x