Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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  • Welcome to Cancer Chat Lindy-lou although I'm sorry about the pains you've been having all over your body recently.

    If you're worried it may be the tamoxifen causing this then do book in to see your doctor so you can discuss this, and possibly coming off it, in more detail.

    Quite a few members on the forum have experienced some of these side effects on Tamoxifen so hopefully they will share their advice and experiences with you soon.

    Our cancer nurses may be able to help as well so if you'd like to chat with them you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope you're able to get to the bottom of this soon Lindy-lou.

    All the best, 

    Steph, Cancer Chat Moderator

  • That sounds terrible! I keep putting off going to the doctors but I guess it's time to go. My Mum has been taking Methatrexate for years got osteoarthritis pain which was really bad and the pain is gone so good luck with that. I will make an appointment today.

    Thankyou

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