Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

Parents
  • Been on tamoxifen for 14 months now, and have noticed worsening pain and stiffness, mainly fingers, toes and wrists, but can be most joints except elbows and shoulders. Some days getting up is the hardest time of the day because of the pain and stiffness. There are some things I find almost too hard to do because of the wrist pain, such as playing my piano. I have nearly given it up. The flushes too - urgh! Dozens of times a day I have to start frantically fanning myself, then 5 minutes later I am cold. It can be pretty miserable at times, but helps a bit to know I'm not alone.

Reply
  • Been on tamoxifen for 14 months now, and have noticed worsening pain and stiffness, mainly fingers, toes and wrists, but can be most joints except elbows and shoulders. Some days getting up is the hardest time of the day because of the pain and stiffness. There are some things I find almost too hard to do because of the wrist pain, such as playing my piano. I have nearly given it up. The flushes too - urgh! Dozens of times a day I have to start frantically fanning myself, then 5 minutes later I am cold. It can be pretty miserable at times, but helps a bit to know I'm not alone.

Children
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