Hi Ladies, I do understand & completely sympathise with you all !!!!!!

As if having breast ca followed by surgery & then chemo  wasn’t enough we get all these awful side effects from the prescribed drugs.

I was prescribed Anesterole but only took it for 8 weeks as I could barely get out of bed in the mornings and trying to get down the stairs was a nightmare!!!  Due to the agonising pain in my feet, legs, groins, hips and hands. I stopped taking it and informed the oncologist who said my quality of life had to be better than that!!! He said I was a high risk & needed to take something so was prescribed tamoxifen!!! He referred me to Rheumatologist and following several blood tests I was diagnosed with Lupus!!!! That was 4 1/2 years ago!!!. I also saw physio & exercisers helped with back, hip & neck pain, also saw o/T & have had various splints for my hands which can ease the pain a little but it never goes away!!! When it has been really bad I have had 2 steroid injections at different times & this has really helped with all the discomfort!!!. I see a great rheumatologist & had my hand scanned last week as the pain was so unbearable!! I couldn’t even go to work; it showed I had severe swelling & inflammation, so had a steroid injection in my hand this has eased it a little!! But is still there!!! 

I believe it is the Tamoxifen as I stopped taking it for six months to see if there was any difference!!! It did improve the severity of pain but did not completely go!!! I started taking the tamoxifen 4 weeks ago & it has significantly worsened again!!!!.

It really affects everything I do, the thumb pain is the worst as there I little you can do without using your hands!!!! I started taking a course of Methotrexate today!!! Not a nice drug but I can’t cope with this constant pain so have to try something!!!

Hi Ladies, I do understand & completely sympathise with you all !!!!!!

As if having breast ca followed by surgery & then chemo  wasn’t enough we get all these awful side effects from the prescribed drugs.

I was prescribed Anesterole but only took it for 8 weeks as I could barely get out of bed in the mornings and trying to get down the stairs was a nightmare!!!  Due to the agonising pain in my feet, legs, groins, hips and hands. I stopped taking it and informed the oncologist who said my quality of life had to be better than that!!! He said I was a high risk & needed to take something so was prescribed tamoxifen!!! He referred me to Rheumatologist and following several blood tests I was diagnosed with Lupus!!!! That was 4 1/2 years ago!!!. I also saw physio & exercisers helped with back, hip & neck pain, also saw o/T & have had various splints for my hands which can ease the pain a little but it never goes away!!! When it has been really bad I have had 2 steroid injections at different times & this has really helped with all the discomfort!!!. I see a great rheumatologist & had my hand scanned last week as the pain was so unbearable!! I couldn’t even go to work; it showed I had severe swelling & inflammation, so had a steroid injection in my hand this has eased it a little!! But is still there!!! 

I believe it is the Tamoxifen as I stopped taking it for six months to see if there was any difference!!! It did improve the severity of pain but did not completely go!!! I started taking the tamoxifen 4 weeks ago & it has significantly worsened again!!!!.

It really affects everything I do, the thumb pain is the worst as there I little you can do without using your hands!!!! I started taking a course of Methotrexate today!!! Not a nice drug but I can’t cope with this constant pain so have to try something!!!