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Muscle & joint pain due to tamoxifen?

Lindy-lou
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Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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    Hi lindy

    im on tamoxifen and can relate to some of what you describe; knees, shoulders, collarbone, pelvic pain and calf cramps and back muscle spasm. was at the GP today for this reason.

    ive been given naproxen for the joint pain etc, physio for my knees and back and awaiting for the ok for Clonidine for hot flushes.

    hopefully all this will help - however I come off tamoxifen soon after taking it for 7 months and onto another hormone med.

    What does your onc. say about coming off tamoxifen?

     

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  • Offline

    Hi lindy

    im on tamoxifen and can relate to some of what you describe; knees, shoulders, collarbone, pelvic pain and calf cramps and back muscle spasm. was at the GP today for this reason.

    ive been given naproxen for the joint pain etc, physio for my knees and back and awaiting for the ok for Clonidine for hot flushes.

    hopefully all this will help - however I come off tamoxifen soon after taking it for 7 months and onto another hormone med.

    What does your onc. say about coming off tamoxifen?

     

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