Dear Kelley,

I lost my 29 year old daughter on 18th December to a rare aggressive salivary gland cancer! I'm struggling so much and came across your story of loss which struck me so hard in its similarities .

My beautiful daughter was so unbelievably fit and healthy but this aggressive disease took her piece by piece. She underwent surgery initially to remive the tumour and get lower jaw and was beginning to get her life back after 12months when a scan showed a spread to her lungs and spine.

Like you we tried everything we could as there seemed to be so little infornation out there. Like your daughter our anazing girl struggled so much with pain when it was discovered she was not absorbing oral meds properly and needed a syringe driver for her last 6 weeks.

The pain of watching someone you love go through such agony is unbearable, you feel powerless to help when as a mother it is what you have always dine.

I notice your post was from the start of 2018 so I dearly hope you have found some peace and that better, happier memories fill your thoughts.

Much love 

Katen

Hello Karen. I've been reading your post . We lost our 27 year old daughter on 20th of October 2018 . She was diagnosed with lymphoma in July 2017 . She was back and forth to the doctors but they dismissed her time after time . She has a beautiful little girl that we are now raising. She was a school teacher and did lots of charity stuff . Our three year old granddaughter misses her mummy so much and as for me . I think I'm loosing my mind I keep thinking of how I can bring her back . The pain of losing her my best friend my go person when I needed a ear is now gone . I keep replying all the horrible pain she went through and the worst for me was when they put her on a driver and she couldn't move or speak I knew she could still hear . The doctors and nurses came in to the room talking about the end of life like she was a old lady like it was just one of those things. I will never forgive them as the tears ran down her face . How do we ever get this pain to stop . We miss her so much I also lost my mum to cancer thirteen months before my husband has had it twice . What's life all about ? Our kind and gentle children are not just a number because they are grown up . Doctors may do things differently if it was their children unable to move and listening to how long they have . I'm so distressed and will never come to terms with it . I just loved her so so much . Just needed to connect with a mum who knows how I feel . Take care and I hope you are navigating this horrendously awful time with plenty of love from all . Thanks for letting me rant x

Hello Karen. I've been reading your post . We lost our 27 year old daughter on 20th of October 2018 . She was diagnosed with lymphoma in July 2017 . She was back and forth to the doctors but they dismissed her time after time . She has a beautiful little girl that we are now raising. She was a school teacher and did lots of charity stuff . Our three year old granddaughter misses her mummy so much and as for me . I think I'm loosing my mind I keep thinking of how I can bring her back . The pain of losing her my best friend my go person when I needed a ear is now gone . I keep replying all the horrible pain she went through and the worst for me was when they put her on a driver and she couldn't move or speak I knew she could still hear . The doctors and nurses came in to the room talking about the end of life like she was a old lady like it was just one of those things. I will never forgive them as the tears ran down her face . How do we ever get this pain to stop . We miss her so much I also lost my mum to cancer thirteen months before my husband has had it twice . What's life all about ? Our kind and gentle children are not just a number because they are grown up . Doctors may do things differently if it was their children unable to move and listening to how long they have . I'm so distressed and will never come to terms with it . I just loved her so so much . Just needed to connect with a mum who knows how I feel . Take care and I hope you are navigating this horrendously awful time with plenty of love from all . Thanks for letting me rant x