Hi, There is no greater reason to fight this and your son sounds like a lovely boy. Thank you for all the advice especially about socks and mittens I didn't know that and wishing me good luck.
Hi Mushroom, It's all so surreal sometimes as I'm sure it is for everyone. Starting Chemo in fortnight 'FOLFIRINOX. There is only 20 to 30% that if will reduce tumour from vein, I'm staying positive. I hope you are well today.
Yes, it feels like a nightmare you can’t wake up from.
You ask yourself.. why me? What did I do wrong. Did I eat the wrong things… i should have exercised more..handled work stress better… the list goes on
So there is hope as they are giving you chemo. Yesterday at work a friend told me his 47 year old wife has bowel cancer, no treatment offered as too far advanced.
You are so right, I do the same looking at why me! Im so sorry to hear about your friends wife thats the worst news anyone can have. It's good to hear you are able to keep working through your treatment. When I was at Beaston Glasgow on Thursday it was an eye opener looking at everyone, every age different stages of this horrible disease cancer. I couldn't stop myself thinking I wander what type of cancer they have so many people. Sone being positive like we are some looking so lost.
Here goes, you may see from my first recent post how truly scared I am. My mental health has hit rock bottom.
i have advanced pancreatic cancer Stage 4. I completed 12 rounds of Folinox and also SABR. I was so sure I would get surgery because SABR had worked. However, upon PET scan 15th September they found a shadow in left hand side supracavical. I did a biopsy last week to be told yesterday cancer has spread to lymph node and now no surgery as spread to a distant node. Absolutely gutted. No mestasis anywhere else, I had two locally before SABR but they have gone. All for this to happen.
Forgive me but I am feeling so angry and bitter and so confused as doctors thought it would be an infection only….
Now I don’t know if I can get on a clinical trial or if no further treatment available.
Hi Lisa I'm so sorry to hear this. Our mental health suffers with this insidious disease. It's so heart breaking for you and your family going through chemo and then being hit with this. I hope a clinical triall becomes available for you . I have my first Chemo combination with folfirinox next Thursday to try shrink tumour next to celuac vein. At the moment I have no spread but I'm aware like you it's so unpredictable. My thoughts are with you x
Thank you. I do wish you all the best for next Thursday. You are strong as you have chose this path. We are fighters. You are quite right you will see strong people and others who need support.
This illness is so cruel and unpredictable. My tip for you is eat and stay strong as you will need energy and strength.
I'm so so sorry to hear what you are going through. it’s the most frightening experience, just not knowing what’s coming next. Anger to bewilderment and back again. A daily routine. I am in the same stage 4 pancreatic that has metastased. Into lungs. I choose not to ask questions of how bad it is, where it is, where it’s likely to go. It would just worry me more. I know it’s bad but all I can do is the chemo, eat well and enjoy every moment with my 13 year old.
if nothing else this awful disease focuses the mind on what is really important. Family.. Years of drinking semi skimmed … well now I’m on blue top
