Hi, I was diagnosed with a tumour in my pancreas last Thursday19th, I’m still in shock, was told menopause, ibs, then my diabetic bloods went sky high , and my urine turned brown. I was sent for a C/T scan and told by a junior doctor at 10.30 that night. I’m 57 and very very scared, I’m still waiting for …..what happens next

• Hi  Nickerynook,  I'm so sorry this is  happening to you and your love ones.   I know iits  really scary Im still in shock as well, as Mushroom said a journey we never thought we would  be on.   I was at my doctors end June with upper right pain,  I ended up having H Pyliro and my doctors also thought   IBS.   2x CT scans one contrast, and  MRI contrast,  EUS FNA  26th August 3 biopsies pancrease diagnosed on 12th Sept .  I have my first oncolgy appt this Thurs.   Please try not to  do doctor google, as I did, the cancer sites  are best.  

Totally agree leave google doctor well alone.

The main charities advice are the way to research.

Unfortunately my 13 year old son has been googling.

My thoughts are with you both….

I hope your feeling ok after your chemo today .  Which chemo are you on ?  I can't imagine how your young son is feeling watching you going through this, it brought a tear to my eye.   

Hi

i got back from Oxford at 6pm.

Thank you for your kind words…

My son is my biggest heartbreak, we have been inseparable since he was born. With all this going on my only concern is leaving him one day. BUT this also is giving me reason to fight this *** and he’s supporting me brilliantly.

Having the chemo is relatively easy. You get a cannula fitted and sit there for 3 hours on the IV. Take a good book.

Two chemo drugs are given separately, gemcitabine is the main one, followed by another I cant pronounce.. Will find out.

So it’s 30mins saline flush, 30mins drug 1, 30 mins saline, 30 mins drug 2, 30 mins saline then home.

Whilst sat there your hands and feet can become uncomfortably hot and tingly. They have cooling socks and mittens that help.

For your first oncologist meeting I would politly suggest writing all questions down before hand as you can stray into other topics and forget the important questions you need answers for…

Hope you get all the answers you need Thursday 

Its clumsy of me to say “good luck” but you know what I mean.

Hi

i got back from Oxford at 6pm.

Thank you for your kind words…

My son is my biggest heartbreak, we have been inseparable since he was born. With all this going on my only concern is leaving him one day. BUT this also is giving me reason to fight this *** and he’s supporting me brilliantly.

Having the chemo is relatively easy. You get a cannula fitted and sit there for 3 hours on the IV. Take a good book.

Two chemo drugs are given separately, gemcitabine is the main one, followed by another I cant pronounce.. Will find out.

So it’s 30mins saline flush, 30mins drug 1, 30 mins saline, 30 mins drug 2, 30 mins saline then home.

Whilst sat there your hands and feet can become uncomfortably hot and tingly. They have cooling socks and mittens that help.

For your first oncologist meeting I would politly suggest writing all questions down before hand as you can stray into other topics and forget the important questions you need answers for…

Hope you get all the answers you need Thursday 

Its clumsy of me to say “good luck” but you know what I mean.

Hi,  There is no greater reason to fight this and your son sounds like a lovely boy.  Thank you for all the advice especially  about socks and mittens I didn't know that and wishing me good luck. 

️

How are you both? Seton sands how did it go today. Did you get the answers you were looking for.

Hi Mushroom,  It's all so surreal sometimes as I'm sure it is for everyone. Starting Chemo in fortnight 'FOLFIRINOX. There is  only 20 to 30% that if will reduce tumour from vein, I'm staying positive.  I hope you are well today.

Yes, it feels like a nightmare you can’t wake up from.

You ask yourself.. why me? What did I do wrong. Did I eat the wrong things… i should have exercised more..handled work stress better…  the list goes on

So there is hope as they are giving you chemo.
Yesterday at work a friend told me his 47 year old wife has bowel cancer, no treatment offered as too far advanced.

All we can do is stay positive as you say, 

You are so right,  I do the same looking at why me!  Im so sorry to hear about your  friends wife thats the worst news anyone can have.  It's good to hear you are able to keep working through your treatment.  When I was at Beaston Glasgow on Thursday  it was an eye opener looking at  everyone, every age different stages of this horrible disease cancer.  I couldn't stop myself thinking  I wander what type of cancer they have  so many  people.  Sone being positive like we are some looking so lost.