So we have had the update, not necessarily the worst news but it’s still not great. Mums cancer is incurable. Nothing other than that - they still don’t know what the primary cancer and the consultant mentioned that it looks like bowel cancer. How can they not know?!

We haven’t been told anything about grade or stage but assuming it’s incurable I’m guessing stage 4. 

The good news - they have said they will start treatment to give us more time. We’re awaiting news on oncologist and next appointment. But again no timespan - it’s so frustrating! I feel like we are being left in the dark.

Does anyone else have experience with this? 

Hi, don't feel like there is no hope for your mum. There is. Always is.Cancer maybe Is Incurable now but is good they start treatment which could change everything. There is a lot of patients stories with stage 4 and they are still alive. After few cycles they probably review again, do CT scan. There is still a chance that cancer may stop growing and shrink and then will be curable. Every patient react different for treatment. Hope will helps your mum!!. Do you know which chemo she will has?Don't be down, have hope. We thought same about my mum, that there is no hope, a year after she is still alive and looking promissing. all doctors are impressed because her chances was down to 0. About waiting for treatment appointment is a bit ridiculous. There is no time to waste, need action now..I can understand your frustration.

Hi, don't feel like there is no hope for your mum. There is. Always is.Cancer maybe Is Incurable now but is good they start treatment which could change everything. There is a lot of patients stories with stage 4 and they are still alive. After few cycles they probably review again, do CT scan. There is still a chance that cancer may stop growing and shrink and then will be curable. Every patient react different for treatment. Hope will helps your mum!!. Do you know which chemo she will has?Don't be down, have hope. We thought same about my mum, that there is no hope, a year after she is still alive and looking promissing. all doctors are impressed because her chances was down to 0. About waiting for treatment appointment is a bit ridiculous. There is no time to waste, need action now..I can understand your frustration.